Hopeful1976
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A year ago we heard how naviaux had replicated his metabolic findings; then nothing.... omf symposium - all quiet again. And others. Does anyone know what's going on with the research big guys?
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Whats happening in research? Naviaux? Davis? Klimas?
- Thread starter Hopeful1976
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wigglethemouse
Senior Member
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NIH conference in April where all the "big guys" will be. Have a look at this thread.
https://forums.phoenixrising.me/thr...nih-research-conference-april-4-5-2019.62920/
@Cort just wrote about it here
https://www.healthrising.org/blog/2...e-chronic-fatigue-syndrome-me-cfs-conference/
https://forums.phoenixrising.me/thr...nih-research-conference-april-4-5-2019.62920/
@Cort just wrote about it here
https://www.healthrising.org/blog/2...e-chronic-fatigue-syndrome-me-cfs-conference/
It is very hard going from conference to conference. Time waits for no man, and youth flies by.
JES
Senior Member
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Davis gave an update around Christmas time, where the main message was that they need to develop a better measurement technique to confirm that the metabolic trap hypothesis is valid.
JES
Senior Member
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I agree. I think it seems very plausible that some of us get stuck in a metabolic state which promotes the illness. Unfortunately the devil is in the details and I'm not convinced the particular trap that Robert Phair found is the one causing the problem.
Jackb23
Senior Member
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- Columbus, Ohio
Can you send link to study? Thanks
I posted one in the latest research board, I'm getting paywalled by another one talking about it. His youtube video back from 2011 or 2013 I believe is very convincing
Seems like information dissemination has slowed. Hopefully there will be good info at the NIH's "Accelerating Research in ME/CFS Meeting" on April 4-5th. You can register to watch online if you cannot attend in person. https://www.nih.gov/mecfs/events It has a good line-up of researchers who will speak. Fingers crossed.
frozenborderline
Senior Member
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I don’t think any irritation or frustration with the pace of research and disclosure should be directed to any of the researchers or organizations. I think it should be directed at the NIH. Of course we won’t see results until the research funding multiplies x10 or more. It’s useless to watch the research like a hawk and wait at this pace for paradigm-shifting discoveries. The researchers are all making valiant efforts but they will not do much at this pace. I am not currently well enough to be involved in advocacy or activism but I swear that if I ever improve even enough to do some things that all my energy will go toward that. Focusing on picking apart the already scant research desperately looking for a crumb that might help us seems way more of a waste of time than directly demanding results , even if the latter seems hard, it’s the only thing that’s ever changed anything
frozenborderline
Senior Member
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Of course I am not judging people who are too sick to be involved in advocacy or activism , but I am saying that if you do have any energy or are more mildly or moderately ill that that’s your best bet for investment of time and resources