I don’t think any irritation or frustration with the pace of research and disclosure should be directed to any of the researchers or organizations. I think it should be directed at the NIH. Of course we won’t see results until the research funding multiplies x10 or more. It’s useless to watch the research like a hawk and wait at this pace for paradigm-shifting discoveries. The researchers are all making valiant efforts but they will not do much at this pace. I am not currently well enough to be involved in advocacy or activism but I swear that if I ever improve even enough to do some things that all my energy will go toward that. Focusing on picking apart the already scant research desperately looking for a crumb that might help us seems way more of a waste of time than directly demanding results , even if the latter seems hard, it’s the only thing that’s ever changed anything