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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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what we have to put up with!

justy

Donate Advocate Demonstrate
Messages
5,524
Location
U.K
Hi all, i dont normally take any interest in the NHS (for obvious reasons) but just found myself looking at the NHS website info on "cfs". I thought the UK government agreed it was M.E and that they have adopted the WHO listing of it as a neurological diease - not so the NHS, which just writes any old crap! no wonder we dont get taken seriously by anyone- including the medical proffession.

Check out their info here: http://www.nhs.uk/conditions/chronic-fatigue-syndrome/Pages/Introduction.aspx

I find it spectacularly offensive. Who writes this? and can we get it changed?
 

free at last

Senior Member
Messages
697
Hi Justy, trust me,untill science proves a testable consistent test, or biomarker,many will never be convinced. Its sad i know. Not surprising some put all there faith in a retro virus is it.