Many of us have experienced temporary (lasting hours) remissions. I've always felt that this was an important observation about ME: it shows that ME can switch state quickly, which means it's a quickly changing biological effect, rather than a permanent degenerative one. It might be helpful for researchers to have a list of factors that triggered these temporary remissions. You may not have definitely identified some factors, but guesses are okay. Reports of ones with mystery triggers might be useful too, to get an idea of how common they are.
I triggered on:
Prednisone: worked for two trials, then it stopped working completely.
Cumin: worked as effectively as prednisone, but stopped working after a few days.
T2 (3-5 diiodothyronine): worked a couple of times, then never again. Iodine, which makes some T2, had the same effect.
I also had a couple of temporary remissions in the first few months of my ME, without knowing what caused them.
My remission seemed to be 100%, and generally lasted for a few hours (I think typically until going to sleep at night).
I had several remissions in the first few months, I think a couple over the next year or two, and the prednisone, cumin, and T2 remissions occurred somewhere between years 5 and 10. So, it's not just an early-stages ME effect.
Ahhh, temporary remissions. I sure miss them.
I triggered on:
Prednisone: worked for two trials, then it stopped working completely.
Cumin: worked as effectively as prednisone, but stopped working after a few days.
T2 (3-5 diiodothyronine): worked a couple of times, then never again. Iodine, which makes some T2, had the same effect.
I also had a couple of temporary remissions in the first few months of my ME, without knowing what caused them.
My remission seemed to be 100%, and generally lasted for a few hours (I think typically until going to sleep at night).
I had several remissions in the first few months, I think a couple over the next year or two, and the prednisone, cumin, and T2 remissions occurred somewhere between years 5 and 10. So, it's not just an early-stages ME effect.
Ahhh, temporary remissions. I sure miss them.