If someone improves on a certain drug or supplement, no one has a right to demand a clinical trial to "prove" they improved. 14% say "this works for me". That's something. 5% say they feel "much better". So for that 19% of poll takers, that's significant.
BCAAs caused a huge improvement for me - reducing my PEM recovery time from 2 - 3 days to 1 day (if I don't severely overdo it). I've been taking them since 2014. I don't have a clinical trial to back up my experience, but I do have my experience. That's all many of us have. So I'll take it. btw, if I slack off taking them for more than a few days, I start to go back downhill rather quickly, so they are my number one supplement I do not run out of.
fwiw, ldn did not help me, made me feel tired and spacey and woozy. BUT - if someone else says it helped them, then more power to them, I'm glad for them.
I've had ME/CFS for 26 years. We're still struggling to be taken seriously. We can't demand clinical trials when almost no money has been allocated for research, etc.
Well, so what. Many say they have had improvement (19% in the poll). It's not up to you to tell them they're wrong.
If I had demanded a clinical trial before trying BCAAs, I'd have spent the last 10 years in more misery than I needed to.
Also, drug companies have so many ways of fudging clinical trial results and burying harsh "side" effects and distorting the results. They may be a gold standard but one still needs to take them with a bottle of salt. (as opposed to a grain)
There is no need to get personal. It’s just my unqualified opinion that’s all. I’m not alone in my view in LDN many on PR think it’s bunkum but don’t wish to put their head above the parapet for fear of people reacting a bit like you are.