hi everyone. i have an upcoming appointment with my cfs specialist to talk about trialing new meds/treatments. i wanted to get some input on what you think might be a good idea for me to request? i’ve found the appointments to be most productive when i go in with a list of things i would like to try and then my doctor tells me if they’d be a good idea in my case or not.
so far this is what i’ve tried: low dose abilify (benefit) low dose naltrexone (benefit), mestinon (benefit) fludrocortisone (didn’t help), celebrex (benefit but not tolerable), beta blockers (helps my pots - settled on metoprolol), valcyte (didn’t help), b12 and glutathione injections (didn’t help).
i’ve been sick with cfs for 4 years now. i had gastroenteritis onset. i’m currently moderate/severe. i suffer from PEM, brain fog, debilitating fatigue, muscle weakness, orthostatic intolerance. not sure if i have mcas issues. may request trialing ketotifen to see if that helps.
do you have any ideas on what medications i should request? what seems promising that i haven’t yet tried?
thank you so much.
so far this is what i’ve tried: low dose abilify (benefit) low dose naltrexone (benefit), mestinon (benefit) fludrocortisone (didn’t help), celebrex (benefit but not tolerable), beta blockers (helps my pots - settled on metoprolol), valcyte (didn’t help), b12 and glutathione injections (didn’t help).
i’ve been sick with cfs for 4 years now. i had gastroenteritis onset. i’m currently moderate/severe. i suffer from PEM, brain fog, debilitating fatigue, muscle weakness, orthostatic intolerance. not sure if i have mcas issues. may request trialing ketotifen to see if that helps.
do you have any ideas on what medications i should request? what seems promising that i haven’t yet tried?
thank you so much.