I've noticed that Dr. Ron Davis doesn't respond to ideas from patients, only researchers. I sent him an email about immunotherapy for ME that was never responded to. Also, I think his ME foundation OMF demands all patent rights and ownership be surrendered which it very intimidating. Does he take a salary from the foundation? Does he have any ownership of it and/or agreement of a percentage of revenue derived from patents? Where are their financials?
I sent a brief discussion of the immunotherapy approach I am working on in the email that went unresponded to. I won't waste time sending detailed information to people who show their lack of interest by not even bothering to respond to an email. Also, I have some concerns about the ownership rights post-research in their agreement. Surrendering ownership to OMF will just deter a lot of self-experimenters who may discover new knowledge.
Good questioning Mr Gbells.I don't know much about the politics but it would be nice to get nice to get some more patient involvement