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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Suposition - Atenolol reduces the action of adrenaline which is why it is used to control BP and heart rate (less beats per minute and reduced beat pressure). Adrenaline in most cases helps to combat pain, however, at least in my experience, it makes neuralgia much worse.Thanks. Why atenatolol? Just read that its usually used for heart diseases.
I’ve been a practicing neurologist for the past 17 years and the most terrible stories that I’ve ever heard were about TN. Most of my patients that suffered from TN were hopeless and desperate. I’ve prescribed thousands of medications: carbamazepine, pregabalin, oxcarbazepine,topiramat and sent to surgery about 100 patients in the past years, most of which are women. These surgeries are horrible and I’ve always tried to help them with other methods such as acupuncture, steroid injections and lidocaine infusions. About 4 years ago I participated in a neurology conference in London, there I’ve heard about NanoVibronix and Pain Shield. I got back to Utah and forgot about Pain Shield. Approximately 2.5 years ago, an old lady approached me with TN. She suffered from dementia and obviously couldn’t get surgery. Then I contacted my British colleague that told me about Pain Shield. Two weeks later, I got the device and urged her family to start using it. I’ve guided her caregiver to come back and see me after two weeks of treatment. I was amazed, absolutely shocked. The old lady herself told me that she is feeling relived and can move her face easily. From that point, before prescribing any medications, I recommend to all of my TN patients to use Pain Shield.
B12. My daughter had this type of pain for 3 years. She has pernicious anaemia and was on standard maintenance dosage of monthly injections of cyanocobalamin. Eventually her doctor agreed to increasing injections and showed her how to self inject. Three months of twice weekly injections got rid of the pain and it hasn't returned. There are research articles that link low B12 to Trigeminal Neuralgia.Unfortunately I have developed atypical trigeminal neuralgia. Constant nerve in my upper face, triggered by using my eyes (reading, watching TV or looking at a computer screen) but also by sound. Ouch.
I would love to hear from others who found something against this.