What could cause hypometabolism?

[crypt0cu1t]

As the title says, I'm curious if anyone has ever had a pet scan of the brain and if so, what were the results?

Mine showed hypometabolism in the cerebellum, medulla, pons & occipital lobes. What exactly could cause this? I have a diagnosis of AE, but just in case AE isn't the right diagnosis, what else could this be?

 

[Alvin2]

I wish i had a good answer.
Have you had the followup specialist appointment yet?

 

[crypt0cu1t]

I wish i had a good answer.
Have you had the followup specialist appointment yet?

Yes, a specialist at UCLA believes that I have autoimmune AChR a3 encephalopathy.

 

[Alvin2]

Yes, a specialist at UCLA believes that I have autoimmune AChR a3 encephalopathy.

Is there a treatment for this?

 

[crypt0cu1t]

Is there a treatment for this?

His treatment protocol is SCIG, Cellcept & rituxan

 

[Alvin2]

His treatment protocol is SCIG, Cellcept & rituxan

Are you going to do it?

 

[crypt0cu1t]

Are you going to do it?

Definitely, I need some relief

 

[Gingergrrl]

Yes, a specialist at UCLA believes that I have autoimmune AChR a3 encephalopathy.

Are you doing the treatment at UCLA?

 

[pattismith]

As the title says, I'm curious if anyone has ever had a pet scan of the brain and if so, what were the results?

Mine showed hypometabolism in the cerebellum, medulla, pons & occipital lobes. What exactly could cause this? I have a diagnosis of AE, but just in case AE isn't the right diagnosis, what else could this be?

any condition that affects brain blood flow, any condition that affects cerebral fluid pressure, etc!

 

[crypt0cu1t]

Are you doing the treatment at UCLA?

I'll be treated with scig at home. For now he wants to stick with scig for a while.

 

[crypt0cu1t]

any condition that affects brain blood flow, any condition that affects cerebral fluid pressure, etc!

Do you have any examples?

 

[crypt0cu1t]

Are you doing the treatment at UCLA?

By the way, how are you doing? I've been meaning to ask you lol

 

[kangaSue]

Dunno, but you can have something similar with Long Covid by the sounds of things.
https://link.springer.com/article/10.1007/s00259-021-05215-4

 

[crypt0cu1t]

Dunno, but you can have something similar with Long Covid by the sounds of things.
https://link.springer.com/article/10.1007/s00259-021-05215-4

Wow, that's insane. It makes me wonder if it's some sort of autoimmune encephalitis that they are developing afterwards.