Wessely's wife opposed to new government plans for GP controlling funding decisions:

Esther12

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http://www.dailymail.co.uk/news/art...outside-GPs-surgeries-revolt-NHS-reforms.html

"'At worst, the negative impact for GPs could be patients lobbying outside their front door, saying 'You've got a nice BMW car but you will not allow me to have this cytotoxic drug that will give me three more months of life',' she told the Guardian newspaper."

I bet her solution is not to reduce GP's wages.

I've not looked up the Guardian piece, and I'm just getting off-line now.
 

pictureofhealth

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How interesting that Dr Gerada now finds herself in opposition to the UK Government's national health plans!

She & her husband's ideas and policies for ME patients have until now been fully supported by the previous Labour government, (and have been in direct opposition to my personal health plans to recover from ME for quite some years now!)

She seems v Socialist & in favour of state controlled medicine, rather than pro private enterprise and patient choice - interesting.
 

Esther12

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Personally, I agree with her on this matter (kind of).

I'm also cynical enough to think that it could be a possible opening for us to get politicians to look more critically at the way CFS has been treated. This story's been covered in a few different papers - often high up the running order. I've still not read the original interview though.
 
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I found myself agreeing with what she says too. I also find myself agreeing with the UK government that ME is a neurologogical condition recognised by the WHO G93.3.

The question is: Is this posturing ? What does she and the government propose to do about any of these issues?
 

Bob

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Treatment for ME patients can't really get any worse in England, seeing as we get zero treatment at the moment, so I think that an NHS reorganisation can't really impact our lives in a negative way.
I've also had some other chronic health problems, during my life, which have been totally neglected by the NHS, and so I think that an NHS reorganisation might not be a bad thing.

But I don't know if the re-organisation would be good or bad, because we don't know exactly how it would work in practise.
In theory, I think some of the plans might be a good idea (e.g. giving GP's the power to directly commission the treatment and tests that their patients require), but our treatment would all hinge on how happy GP's were to spend their tight budgets on patients, like us, who are not going to see any cheap and fast successful health results.

In practise, I can't help feeling that it's all going to be a totally ill-prepared, chaotic, mess... And a lot of patients are going to suffer from the chaos.
 
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Doctors trained to neglect:
PART 2: http://www.youtube.com/watch?v=cO7ua4IB5Hs

At 10.51 Clare Garada, (Mrs Wessely), in a scripted training video for GPs in how to handle ME patients, except the patients are played by actors and members of the ‘CFS’ team (Vincent Deary and Alicia Deale) and their scripted parts don’t sound like people who have ME. Clare Garada interviews an actor who plays the patient. The ‘patient’ says he is “tired all the time, is a ‘student’ and works in a pub at nights, drinking several pints a night to get to sleep, and in addition socializes at the weekends which involves more drinking (this is a fictional patient played by an actor).


Clare Garada does a ‘sleep hygiene’ management session and tells the ‘patient’ how to get out of his “tired all the time” problem, to “get off to sleep” at night, and to manage his alcohol consumption (ie to bring it down to 2 pints a night)!!??!!


These videos use double speak to blur the distinction between common sleep problems, TATT (Tired all the Time), CFS, and ME. Andree Tylee, and Trudy Chalder discuss how to manage ‘CFS’ patients, illustrated by mock interviews.

Andre Tylee: http://en.wikipedia.org/wiki/André_Tylee




Another thread about these GP training Videos:
http://www.forums.aboutmecfs.org/sh...English-GP-s-on-how-to-deal-with-CFS-patients



‘CFS’ training videos for GPs

PART 1:http://www.youtube.com/watch?v=goz_tTaWmfE

PART 2:http://www.youtube.com/watch?v=cO7ua4IB5Hs

PART 3:http://www.youtube.com/watch?v=KYQpFtl2xe8

PART 4:http://www.youtube.com/watch?v=k5qalCDEOis
 

Esther12

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d works in a pub at nights, drinking several pints a night to get to sleep, and in addition socializes at the weekends which involves more drinking (this is a fictional patient played by an actor).
lol.

I remember that. She negotiates him down to drinking two pints on most nights, and then only getting pissed at the weekends. I don't want to do down those who find they are doing/drinking too much and feeling tired because of it - but I've never known anyone with CFS to be acting like that.
 
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Ah well, these videos are minor classics of indie filmaking. In fact the Maudsley and the Institute of Psychiatry could have a minor masterpiece on their hands as the training videos appear to have invented a brand new sub-genre ....
Nouvelle Vaguely Didactic Medico-Surrealist..... Bunuel eat yer heart out.
 

Enid

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Whatever her opposition (who is she ? does she understand or research virals as the US) A non entity, a distraction. We have here a new coalition government who may now listen to the real thing. Old "big" names and your pathetic input step aside.
 

Bob

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We have here a new coalition government who may now listen to the real thing.
Hi Enid,
I thought that we weren't making any progress with the new government...
Have I missed something important?
Do you have any info that I'm not aware of?
Or are you just being hopeful and optimistic?
I'd be grateful for any info about this if you have any,
Bob