ScottTriGuy
Stop the harm. Start the research and treatment.
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If you could ask Minister of Health Dr Jane Philpott any question about ME, what would it be?
Millions Missing Canada is gearing up for our campaign’s objective of meeting with Minister Philpott about creating a national strategy for ME and we need your help in developing the questions we will pose to Minister Philpott in our new “Ask Minister Philpott” video campaign.
We want to build on the momentum created by the upcoming global Millions Missing campaign and the Canadian virtual demonstration on September 27th.
To leverage that momentum we are producing a series of videos intended to increase awareness of ME issues with Minister Philpott, the media and the public. In the series “Ask Minister Philpott”, we will pre-record ME patients asking Minister Philpott a question about ME research funding or healthcare.
These videos will be edited for consistent branding and messaging and will be released every week or so as part of our consistent and persistent advocacy campaign to have a meeting with Minister Philpott about creating a national strategy for ME.
But now we’re at the brainstorming stage and creating a list of relevant questions to ask Minister Philpott and need the ME communities collective wisdom determine the best questions.
Basically each question will have 2 parts: first a statement of fact (X) about ME, followed by a question framed by ‘a meeting to discuss a national strategy for ME to address fact X’.
Examples:
“Minister Philpott, the government’s own data in the Canadian Community Health Survey 2014 shows ME patients have by far the highest unmet healthcare needs of all chronic diseases. When will you meet with ME patients to talk about how creating a national strategy for ME will improve the quality of healthcare of ME patients?”
“Minister Philpott, the government’s own data of research funding shows that the average investment for MS, Alzheimer’s, Parkinson’s, and Epilepsy was $158 per patient, but for ME it was a shocking and paltry 11 cents per patient. When will you meet with ME patients to talk about how creating a national strategy will establish biomedical research funding commensurate with the severity and prevalence of ME?”
What question would you like to ask Minister Philpott about ME research funding or healthcare experience? What is important for her and the public to know? What question is important that she answers?
Millions Missing Canada is gearing up for our campaign’s objective of meeting with Minister Philpott about creating a national strategy for ME and we need your help in developing the questions we will pose to Minister Philpott in our new “Ask Minister Philpott” video campaign.
We want to build on the momentum created by the upcoming global Millions Missing campaign and the Canadian virtual demonstration on September 27th.
To leverage that momentum we are producing a series of videos intended to increase awareness of ME issues with Minister Philpott, the media and the public. In the series “Ask Minister Philpott”, we will pre-record ME patients asking Minister Philpott a question about ME research funding or healthcare.
These videos will be edited for consistent branding and messaging and will be released every week or so as part of our consistent and persistent advocacy campaign to have a meeting with Minister Philpott about creating a national strategy for ME.
But now we’re at the brainstorming stage and creating a list of relevant questions to ask Minister Philpott and need the ME communities collective wisdom determine the best questions.
Basically each question will have 2 parts: first a statement of fact (X) about ME, followed by a question framed by ‘a meeting to discuss a national strategy for ME to address fact X’.
Examples:
“Minister Philpott, the government’s own data in the Canadian Community Health Survey 2014 shows ME patients have by far the highest unmet healthcare needs of all chronic diseases. When will you meet with ME patients to talk about how creating a national strategy for ME will improve the quality of healthcare of ME patients?”
“Minister Philpott, the government’s own data of research funding shows that the average investment for MS, Alzheimer’s, Parkinson’s, and Epilepsy was $158 per patient, but for ME it was a shocking and paltry 11 cents per patient. When will you meet with ME patients to talk about how creating a national strategy will establish biomedical research funding commensurate with the severity and prevalence of ME?”
What question would you like to ask Minister Philpott about ME research funding or healthcare experience? What is important for her and the public to know? What question is important that she answers?