alex3619
Senior Member
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- 13,810
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- Logan, Queensland, Australia
my cousin was diagnosed with Ehlers-Danlos which I'm sure I also have.
I was talking to someone with EDS recently, and they said they were an encephalitis survivor. I wonder how common that is in EDS. Lipkin identified an ME subgroup, which he labelled Atypical ME, in which there is a stable cytokine profile. This group contains lots of encephalitis survivors. I wonder how common that is too. I am also an encephalitis survivor.
If EDS compromises the blood brain barrier and so pathogens can more easily cross to the brain then encephalitis should be more common. This may be a powerful ME trigger.