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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Video: How did ME wind up as the most controversial disease of our time?

Sasha

Fine, thank you
Messages
17,863
Location
UK
Thanks again, @deleder2k! You're a star. Jorgen Jelstad is a great speaker and knows how to tell a story. He is a journalist and has a blog about ME:

http://debortgjemte.com/

And if anyone wants to donate to Ian Lipkin's project, the link is in my signature. :)
 

deleder2k

Senior Member
Messages
1,129
Haha, I am not a star. Olav Mella and Øystein Fluge are the stars. Jørgen Jelstad has also done an incredible job. I hope we're getting somewhere rather quick. Fluge himself answers e-mails as of today, even though I would expect him to have holiday. I will update you guys when the study starts.
 

DanME

Senior Member
Messages
289
@deleder2k Mange Takk! I was impressed by his talk. With a little bit more detail he could be a TED participant. Maybe he should go there, rising awareness... :) His pun about the doctor with MS was a great one.

I am reading his blog right now - roughly translated with google.
 
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