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Hello )
I am 38 yo male from Ukraine.
I have a number of nasty mutations MTHFR C677T +/+,MTR A2756G +/-MTRR A66G +/+, BHMT-08 +/+ and if its not enoughCOMT V158M +/+, COMT H62H +/+ and looking back I think almost whole my life I am B12 defficient. As a result now I have a lot neuropathy sympthoms, POTS and probably CFS.
So far I havent experienced prominent fatique issues but I have swollen lymph nodes in the neck and light fever at around 37C that sometimes subsides, sometimes goes forward. It can be connected with my withdrawal from excercise when I feel myself worse and PENE reaction to the excersise after I feel myself better. All this sympthoms occure less than a year ago and all this time I lost in attempts to diagnose a illness. This search ended only when I discovered my SNP status and checked my symptoms against CFS and POTS.
As for my POTS I definitely have some symptoms for years back, just didnt payed enough attention at a time.
So my current status is no prominent pain or fatique, light fever, swollen lymph nodes, POTS.
Some GI problems that could be attributed as IBS.
I have IgG EBV, positive PCR for HV6 in saliva (my doctor at a time said it isnt a problem), No CMV.
I also have low WBC count around 3.5 with low neutrophilies and somewhat distorted T cells immunology profile.
To address my B12 defficiency I already started Folate and some sublingual MeB12, plus ordered B12Oils.
To address probable CFS I need your advice on treatment. Lab capabilities in Ukraine are limited and I already done almost every test available. I read somewhere at this forum that If treatment started early on desiase and it is aggressive enough that there is big chance of a remission. Is it true and could it be achieved in my case ?
Should I suspect that my main problems is EBV and HV6 ?
What is the optimal treatment options for the cause ?
I have a very limit budget to play with but can loan some money. And in any case I could not exceed $500 a month so would try to use some generics at lower dosages if needed.
So far I started already
Inosine
LDN (just building up a dose for 2 days)
And I REALLY appreciate any help with advice because I am so puzzled now and have zero experience on a subject.
I am 38 yo male from Ukraine.
I have a number of nasty mutations MTHFR C677T +/+,MTR A2756G +/-MTRR A66G +/+, BHMT-08 +/+ and if its not enoughCOMT V158M +/+, COMT H62H +/+ and looking back I think almost whole my life I am B12 defficient. As a result now I have a lot neuropathy sympthoms, POTS and probably CFS.
So far I havent experienced prominent fatique issues but I have swollen lymph nodes in the neck and light fever at around 37C that sometimes subsides, sometimes goes forward. It can be connected with my withdrawal from excercise when I feel myself worse and PENE reaction to the excersise after I feel myself better. All this sympthoms occure less than a year ago and all this time I lost in attempts to diagnose a illness. This search ended only when I discovered my SNP status and checked my symptoms against CFS and POTS.
As for my POTS I definitely have some symptoms for years back, just didnt payed enough attention at a time.
So my current status is no prominent pain or fatique, light fever, swollen lymph nodes, POTS.
Some GI problems that could be attributed as IBS.
I have IgG EBV, positive PCR for HV6 in saliva (my doctor at a time said it isnt a problem), No CMV.
I also have low WBC count around 3.5 with low neutrophilies and somewhat distorted T cells immunology profile.
To address my B12 defficiency I already started Folate and some sublingual MeB12, plus ordered B12Oils.
To address probable CFS I need your advice on treatment. Lab capabilities in Ukraine are limited and I already done almost every test available. I read somewhere at this forum that If treatment started early on desiase and it is aggressive enough that there is big chance of a remission. Is it true and could it be achieved in my case ?
Should I suspect that my main problems is EBV and HV6 ?
What is the optimal treatment options for the cause ?
I have a very limit budget to play with but can loan some money. And in any case I could not exceed $500 a month so would try to use some generics at lower dosages if needed.
So far I started already
Inosine
LDN (just building up a dose for 2 days)
And I REALLY appreciate any help with advice because I am so puzzled now and have zero experience on a subject.