Centime Tara
Senior Member
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- 176
Have anyone been to Upstate University Hospital’s Autonomic Disorders Clinic in Syracuse NY? It’s my last unexplored resource. I hardly dare hope they can help me.
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Upstate University Hospital
- Thread starter Centime Tara
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wabi-sabi
Senior Member
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- 1,367
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- small town midwest
The doc there has some interesting papers, so sounds like there's reason for hope.
https://link.springer.com/article/10.1007/s10286-022-00880-3
https://link.springer.com/article/10.1007/s10286-022-00880-3
Centime Tara
Senior Member
- Messages
- 176
Well, I finally got an appointment after two years of trying. They did all the usual tests (tilt table, etc.) and then told me the doctor had gone elsewhere and there was no one to interpret the results. Sigh.
wabi-sabi
Senior Member
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- 1,367
- Location
- small town midwest
Oh, how terribly disappointing! Could they not have told you that before all the testing? You can always post the results here and see if anyone has any ideas.
Centime Tara
Senior Member
- Messages
- 176
Thanks—good idea. Once I get a copy of the results, I’ll do that.