Updated ME/CFS prevalence estimates reflecting post-COVID increases and associated economic costs and funding implications (Mirin et al., 2022)

Pyrrhus

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Updated ME/CFS prevalence estimates reflecting post-COVID increases and associated economic costs and funding implications (Mirin et al., 2022)
https://doi.org/10.1080/21641846.2022.2062169

From the amazing Art Mirin, Mary Dimmock, and Lenny Jason:
Mirin et al. said:
In this article, we update our earlier analyses of myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) economic impact and its National Institutes of Health (NIH) funding versus disease burden, taking into account the anticipated new cases of ME/CFS resulting from COVID-19.

Prior to the COVID pandemic, we estimated a United States ME/CFS prevalence of 1.5 million and an annual economic impact of $36–51 billion. Now, due to COVID and its resulting post-acute sequalae, we estimate total ME/CFS prevalence could rise to between five and nine million.

This would incur an annual U.S. economic impact of $149 to $362 billion in medical expenses and lost income, exclusive of other costs, such as disability benefits, social services, and lost wages of caretakers.

NIH funding for ME/CFS research would need to expand from the current amount of $15 million per year to approximately $472–$600 million annually, up to a 40-fold increase, to be commensurate with that of similarly burdensome diseases.
(spacing and emphasis added)
 

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Last year's paper by the same authors:

Updating the National Academy of Medicine ME/CFS prevalence and economic impact figures to account for population growth and inflation (Jason and Mirin, 2021)
https://solvecfs.org/wp-content/uploads/2021/02/Jason-Mirin_Prevalence_econ_update.pdf

Excerpt:
Jason and Mirin 2021 said:
ABSTRACT
We update the US prevalence and economic impact estimates of the 2015 National Academy of Medicine report on myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS), taking into account growth in population, economic inflation, and inclusion of children. We find a rough doubling of the ME/CFS prevalence and economic impact figures in the US, with low-end prevalence coming out to 1.5 million and economic impact having a range of 36–51 billion dollars per year.
 

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Related discussions:

Incidence of myalgic encephalomyelitis/chronic fatigue syndrome in a large prospective cohort of U.S. nurses (2017)
https://forums.phoenixrising.me/thr...s-in-a-large-prospective-cohort-of-u-s.51591/

Canadians reporting a diagnosis of fibromyalgia, chronic fatigue syndrome, or multiple chemical sensitivities, by sex, household population aged 12 and older (2015-2016)
https://forums.phoenixrising.me/threads/prevalence-of-cfs-in-canada.44634/

The prevalence of chronic fatigue syndrome/ myalgic encephalomyelitis: a meta-analysis (2013)
https://forums.phoenixrising.me/thr...lgic-encephalomyelitis-a-meta-analysis.22574/

Prevalence, Incidence, and Classification of Chronic Fatigue Syndrome in Olmsted County, Minnesota, as Estimated Using the Rochester Epidemiology Project (2012)
https://forums.phoenixrising.me/thr...e-syndrome-in-olmsted-county-cdc-study.20538/

Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care (2011)
https://forums.phoenixrising.me/thr...phalomyelitis-chronic-fatigue-syndrome.11573/
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My entire timeline on twitter and news feed last 2 days is awash with ME mentions, fatigue being CORRECTLY described by papers and a dire request for funding to stop the issue.

Me thinks a good chunk of the pop and doctors are SUDDENLY suffering from post viral illness/early ME sickness behavior. Surprise surprise they are aghast at the lack of input from governments to fix this burgeoning economic hit. Can't believe it...wonder how long it will last also.
 

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For comparison, we can also look at the Long Covid Impact Paper from Solve ME:

https://solvecfs.org/wp-content/uploads/2022/04/Long_Covid_Impact_Paper.pdf

Using mathematical models, publicly available data, patient-led research, and the published natural histories of other post-infection illnesses, specifically myalgic encephalomyelitis/chronic fatigue syndrome (ME/ CFS), Solve M.E. estimates the prevalence and cost of Long Covid on adult Americans, presented here. Most importantly, these estimates differentiate between persons with milder symptoms and those experiencing disability or inability to work. While noting limitations of population and serology data, including under-reporting and gender bias, these mathematical models and analyses were developed with a specific emphasis on the impacts of this mass disabling event on American labor markets and labor shortages. Among the key findings, our models estimate:
1652170975444.png

[...]
While the overwhelming scale of COVID-19 and its estimated impacts on the labor force are the focus of this analysis, it is important to note that prior to the current pandemic, there was and remains an existing group of people who experience the long-term impacts post-infection diseases. These conditions include ME/CFS, which was already costing the US economy up to $51 billion annually2 and postural orthostatic tachycardia syndrome (POTS), which costs 51% of patients over $10,000 or more,3 prior to the exponential growth caused by Long Covid. These should serve as a sobering reminder and a call to action to urgently address this looming public health crisis.