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To be honest what matters is how many MPs came and what the messages were and what if any a plan is now on various issues . I keep hearing of the need for more research funding but via what path, do the charities actually think we could & should be getting more money given because if not loads of people are just wasting their breath saying that's what needs to happen because without a plan or lobbying it won't.
#MEaction seem more focused on GET and NICE, that might have some feasible action plan via petitions etc.
It's good if some MPs now know more and care more about the issue and well done to those with limited energy for going and representing us but I'm not sure how much lasting impact now the APPG is over
#MEaction seem more focused on GET and NICE, that might have some feasible action plan via petitions etc.
It's good if some MPs now know more and care more about the issue and well done to those with limited energy for going and representing us but I'm not sure how much lasting impact now the APPG is over