Moderator's Note: the first three posts in this thread have been moved from this thread: https://forums.phoenixrising.me/thr...-to-gain-tools-to-get-the-care-we-need.84303/
what do you mean by patches of numbness? When growing up I have had random spots on my body where I dont have any sensation to touch, more or less numb. It persisted for long times each time. But Its probably not the same as you mentioning. Ive always thought what I had was weird.I went to an immunologist I think in the second year of illness. He did testing and some results showed myelin antibodies. I also had high titers of EBV and it was his belief that the EBV was attacking the myelin sheath. I wish I still had these test results because I have wanted to show them to other Dr.'s.
Edited to add: Besides all the usual CFS symptoms, I had profound muscle weakness along with patches of numbness.
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