UK: The ME Association has joined the Long Covid Alliance

[livinglighter]

In efforts to ensure that people with ME are included in Long Covid research the UK charity, The ME Association has joined The Long Covid Alliance.

https://meassociation.org.uk/2021/03/the-me-association-has-joined-the-long-covid-alliance/

Taken from the website;

https://longcovidalliance.org/about/

Who We Are
The Long COVID Alliance is a network of patient-advocates, scientists, disease experts, and drug developers who have joined together to leverage their collective knowledge and resources to educate policy makers and accelerate research to transform our understanding of post-viral illness.

 

[bensmith]

I wonder who the drug developers are? Like big companies possibly?

 

[livinglighter]

I wonder who the drug developers are? Like big companies possibly?

I tried looking but I haven't come across the names yet.

 

[bensmith]

Thanks for looking, ill keep an eye out too.

 

[Pyrrhus]

Wow.

LONG COVID ADVOCATES JOIN TOGETHER TO FORM ALLIANCE TO MAKE POLICY RECOMMENDATIONS, SECURE RESEARCH FUNDING, AND TRANSFORM UNDERSTANDING OF POST-VIRAL ILLNESSES
https://solvecfs.org/wp-content/upl...ance-Launch-Press-Release-2-25-2021_FINAL.pdf

The alliance includes Solve ME, MEAction, the Covid-19 Longhauler Advocacy Project, and Body Politic, among many others. We've never seen such an alliance between ME/cfs groups and Long Covid groups before.

Here's the new website for the alliance:
https://longcovidalliance.org/

 

[livinglighter]

Even Action for ME has joined. After posting I later found out there are several ME bodies part of the alliance.

 

[godlovesatrier]

Great news. Sadly the more fashionable it becomes to talk about covid and long covid. Fashionable in the sense that columnists and journos will become morbidly fascinated by it even after the worst is over. That will draw great attention to us as well. Which can only be a good thing. But sad it's come to this for it to happen. You think more than a handful of doctors would have been interested in why the human immune system acts the way it does.

I guess darwinism has a lot to answer for.

 

[livinglighter]

Great news. Sadly the more fashionable it becomes to talk about covid and long covid. Fashionable in the sense that columnists and journos will become morbidly fascinated by it even after the worst is over. That will draw great attention to us as well. Which can only be a good thing. But sad it's come to this for it to happen. You think more than a handful of doctors would have been interested in why the human immune system acts the way it does.

I guess darwinism has a lot to answer for.

I’m not 100% sure, but I think if we look towards neuroimmunology it probably has already been discussed.

Research into ME (widespread pain with brain and spinal inflammation) before it was redefined as CFS didn’t depict images of the inflammation of the CNS. Since then, however, there are many Encephalomyelitis studies showing just that.