Snowdrop
Rebel without a biscuit
- Messages
- 2,933
Davey Smith's cogent argument--and the response to it--really does make clear the origin of the bad feelings between the BPS group and ME activists. The BPS have known for some time that they may have got it very wrong in this case especially so because with this disease process that is ME GET can cause actual harm while CBT ignores the severity of the disease in favour of treating fatigue.
You can sense that they feel cornered and very angry about being perceived as silly fools in hindsight (I see the statement as an admission of error). At least parts of the BPS school have been repositioning themselves for some time. But the damage is done. Getting out from under it is proving difficult especially given that their ideas are 'out there' on the internet--a possibly unforeseen complication.
These are people who are distinguished professionally, given awards etc so it would be reasonable for it all to be quite galling that they should be badly treated by those they tried to help. Unfortunately they paradigm they work from is insupportable but it is the very foundation of what they do and how they do it. For us who have been harmed (even if by proxy--stalling research that would have benefitted all of us) it is more difficult to accept the reasonableness of the BPS concern for their reputation.
The efficacy of CBT for ME has been downgraded to modest --a fortunate word choice as it sounds relatively close in meaning to the previous moderate efficacy. This may also explain the remarkable recoveries that we've been hearing about in the British press. No need to refer to CBT . . .back to vigourous exercise. So if we ME patients are going to be so unkind and ungrateful perhaps making it more difficult will show us who we're dealing with.
You can sense that they feel cornered and very angry about being perceived as silly fools in hindsight (I see the statement as an admission of error). At least parts of the BPS school have been repositioning themselves for some time. But the damage is done. Getting out from under it is proving difficult especially given that their ideas are 'out there' on the internet--a possibly unforeseen complication.
These are people who are distinguished professionally, given awards etc so it would be reasonable for it all to be quite galling that they should be badly treated by those they tried to help. Unfortunately they paradigm they work from is insupportable but it is the very foundation of what they do and how they do it. For us who have been harmed (even if by proxy--stalling research that would have benefitted all of us) it is more difficult to accept the reasonableness of the BPS concern for their reputation.
The efficacy of CBT for ME has been downgraded to modest --a fortunate word choice as it sounds relatively close in meaning to the previous moderate efficacy. This may also explain the remarkable recoveries that we've been hearing about in the British press. No need to refer to CBT . . .back to vigourous exercise. So if we ME patients are going to be so unkind and ungrateful perhaps making it more difficult will show us who we're dealing with.