I came across this last night. From what I have seen in the past, Dr. Crawley does little biological testing - most of her studies are just questionnaires.
Delivering Health Research
National Institute for Health Research Progress Report 2008/09
Focus on… clinician scientists
Answering the questions that patients want answered
“Myalgic encephalomyelitis (ME or chronic fatigue) is a disabling condition that may affect as many as one in 25 children and young people. Yet it is often under-diagnosed because parents think children are just being lazy or don’t like school.
“The work we are doing, thanks to the 900,000 received from the NIHR, is providing a bridge between academic research and the world of the clinician.
It is enabling me and a research assistant to discover exactly how common ME is among children and young people, triggers of the condition, such as lack of sleep, what services help most and what we can do to prevent it. In short it is helping us to answer the questions that children and young people and their families want answered.”
Paediatrician Dr Esther Crawley received one of our clinician scientist awards to investigate chronic fatigue syndrome (CFS/ME) in children and young people. These awards help individuals to establish themselves as independent scientists. See the patient experience story on page 53
Patient experience story
“My son Ben, nine, was diagnosed with ME or chronic fatigue after many
frustrating months of trying to find out what was wrong. I was at my wits’
end as to what to do and family life as we knew it slowly disintegrated. No
more outings, no more holidays. Ben was too tired to do anything and worse
still did not seem to be getting any better.
“The help we got from paediatrician Esther Crawley has been tremendous. She
worked out a strict management plan for me – Ben was only allowed to do so
much and no more. Slowly he got better but it was a long journey. Dr
Crawley’s support and encouragement meant so much as being the parent of a
child with ME is a lonely experience. There is very little help and
information out there and more often than not you are just left to get on
with it by yourself.
“I would do anything to help the NIHR to fund the work that Dr Crawley is
doing to further ME research. Ben is now back at school but I don’t think he
would have been without the NIHR research project. I was lucky but others
aren’t so fortunate. We urgently need more doctors like Esther to help us in
our search for a cure for ME.”
Jules Wright, Ben’s mother
Dr Esther Crawley’s research is providing a better understanding of the
cause, treatment and prevention of chronic fatigue syndrome (CFS) or ME in
children thanks to an NIHR Clinician Scientist Fellowship. Her study is the
first to examine CFS/ME in children in such detail. See page 42 for further