Treatment of the Narcoleptiform Sleep Disorder in CFS with Sodium Oxybate

sensing progress

Senior Member
Tucson, AZ
Apologies if this has been posted before. This was published back in January of this year.

Talks about treatment with Sodium Oxybate, aka Xyrem. Seems that quite a large percentage of people had a positive response.

Unfortunately Xyrem is very expensive, per wikipedia:

Like most newly-approved drugs, Xyrem is produced by only one manufacturer, who in this case is also the only approved retailer. Thus, the price is not likely to drop due to competitive pressure. The price steadily increased from 2007 to 2009. At the beginning of 2007, a monthly dose cost roughly $900–$1,000. As of January 2009, that same dose cost just under $1,500, having increased by more than $400 in the year 2008 alone. As of May 15, 2009, the standard monthly supply of Xyrem cost $2,000. The patents Jazz hold on Xyrem will not expire until 2020.