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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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My daughter and I both improved dramatically with Valtrex for EBV and Valcyte for HHV6. Valcyte should work as well or better for CMV.
Since herpesvirus infections (EBV, HHV6, CMV, HSV, varicella zoster, etc) remain in the body forever (well, until we die, anyway) there is always the chance that they will reactivate, especially when there is immune dysfunction. So while antiviral treatment for herpesviruses can knock the viruses back into latency, they do not cure the infection. For that reason, it may be necessary to repeat antiviral treatment periodically.
I had about 6 months of azithromycin for C. pneumoniae which helped. It wasn't nearly as big for me as getting EBV and HHV6 under control, though.
Also, did you try anything else (Lysine, monolaurin, etc...) for the viral infections? If so, anything that worked?
Who here has success treating bacterial and/or viral infections? Any suggestions for the following?
- Campylobacter
- Lyme (IgM P39)
- EBV (VCA and Nuclear Antigen IgG)
- Chlamydia pneumonia (IgG)
- Mycoplasma pneumonia (IgG)
- Cytomegalovirus (IgG)
I went from positive to negative on C. Pneum and my reactivated EBV went down considerably. This was on a protocol that included injected GcMAF, Nexavir and a low and slow methylation protocol. (there were other elements too)
I am about to start treating Bartonella with antibiotics but expect that will take several years.
Sushi
@Sushi
Wow that GcMAF looks so promising! I wish I could use it but I live in the U.S. :/ I will ask my LLMD to apply to get some though, good job on treating all those viruses!
I posted a protocol I am using for lyme above, which Bartonella is a co infection of check it out!
Also be sure to get something that can bust through the bio film for the abx!
Who here has success treating bacterial and/or viral infections? Any suggestions for the following?
@Martial
P.S. If you are thinking of GcMAF, it is important to do some testing before trying it as it is not suitable for those with certain conditions like high levels of inflammation. Also, Lyme patients seem to have a harder time tolerating it, but then I guess you have been treating Lyme for sometime? So that might not apply to you.
It is good to have a doctor with GcMAF experience or one who is willing to be in contact with other doctors that do, as dosing is somewhat tricky and some of the literature recommends a dose that is too high for most ME/CFS patients. Prices also vary a great deal from source to source.
Best,
Sushi
@dmholmesFor Lyme I guess you mean Borrelia because the co-infections have their own requirements. I treated Borrelia and Cpn mainly with antibiotics (natural treatments did not work well) by using combinations effective against both.
Sorry I did not see this...Martial has already answered. Also for an idea of the role of testing in diagnosing Borrelia and co-infections it is worth reading Burrascano's guidelines and finding an LLMD who is experienced enough to make a clinical diagnosis.It is from Labcorp Western Blot. The only positive marker was Lyme IgM P39. Is that worth following up on? Burgdorferi, Bartonella, Babesia all negative.
@Sushi, it should take weeks with the right protocol. It was easier and quicker than Borrelia which never goes away completely in any case. Good luck.I am about to start treating Bartonella with antibiotics but expect that will take several years.
Sushi
Sorry I did not see this...Martial has already answered. Also for an idea of the role of testing in diagnosing Borrelia and co-infections it is worth reading Burrascano's guidelines and finding an LLMD who is experienced enough to make a clinical diagnosis.