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Training videos for English GP's on how to deal with CFS patients

Dolphin

Senior Member
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Here's an extract:
=============
Vignette 5
Reconstruction of a typical GP consultation

Dr Clare Gerada (Simon Wessely's wife) and Alicia Deale (playing the patient):

"...can I have a little look at
your diary?.....I think what your diary shows is again how important it is that we develop a consistent approach because what we talked about was that it's important that we break this association between activity and your symptoms .... we've talked before about the fact that you walk at the moment to the bus stop to go to work, how long extra would it be if you walk to the next bus stop?...."

"...what we're trying to do here as I've said to you is to break this association between activity and your symptoms because equally if you feel rotten I still want you to do that activity...even if you're absolutely exhausted I still want you to do your ten minute walk in the morning and the ten minute walk in the evening after work...

Alicia Deale (Patient): 'Is that going to be safe?'

Clare Gerada: it will be safe - all the evidence that we've put together and all the the research literature shows that is absolutely safe you will not do yourself any harm..."
They don't have evidence at all that doing such activity when feeling unwell is safe.
Dr. Clare Gerada (the doctor in this clip and Simon Wessely's wife) has just been elected as the next chair of the Royal College of GPs (RCGP).
http://www.pulsetoday.co.uk/story.asp?sectioncode=35&storycode=4125612&c=2
 

justinreilly

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NYC (& RI)

justinreilly

Senior Member
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Location
NYC (& RI)
ive just posted these videos to my facebook page . im sorry but these actors pretending to be patients bare no resemblance to the illness and problems to which i am suffering if this is how my doctor percieves my illness no wonder i am getting no support or treatment . it really is a joke . to my worldwide friends i hope for your sakes your countries do not follow suit cause if they do it is god help you .No mention of pain or nuero problems grrr if 'tiredness' as they put it was my only problem id be laughing . talk about trivialising an illness they really havent got a clue !
Polly- Thanks for posting this on your FB. It really needs to be exposed.

Actually they do mention 'neuro problems'- by saying there aren't any! They say there is no nerve pathology in 'CFS'!!!
 

justinreilly

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I didn't know I could negotiate a diagnosis! Damn! I could have picked something treatable!

Actually, I blame my doctor. Here's how my diagnosis went:

Doctor: I think you have chronic fatigue syndrome.

Me: What's that?

Doctor: Well, some people are just tired all the time. But, it has to last for at least six months.
:D

Yes, people should request that facility (swapping ME/CFS for another diagnosis) for the next round of healthcare reform. :Retro wink:
True dat!!!!!!!!!!!
 

ukme

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Dr Chalder says she gets 70% of her patients better plus she thinks people should be dissuaded from contacting organisations like the ME association and asking for lots of tests - merely keeping a diary, sleeping 8 hours a day and a bit of CBT will do the trick. Is she for real?

The whole tone of this video is deeply patronising and the pair of them clearly have no idea what they're dealing with.
 

valia

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Dr Chalder says she gets 70% of her patients better plus she thinks people should be dissuaded from contacting organisations like the ME association and asking for lots of tests - merely keeping a diary, sleeping 8 hours a day and a bit of CBT will do the trick. Is she for real?

The whole tone of this video is deeply patronising and the pair of them clearly have no idea what they're dealing with.

I believe they know exactly what they are dealing with, they just dont want anyone else to know :Retro mad:
 

justinreilly

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Dr Chalder says she gets 70% of her patients better plus she thinks people should be dissuaded from contacting organisations like the ME association and asking for lots of tests - merely keeping a diary, sleeping 8 hours a day and a bit of CBT will do the trick. Is she for real?

The whole tone of this video is deeply patronising and the pair of them clearly have no idea what they're dealing with.
I believe they know exactly what they are dealing with, they just don’t want anyone else to know :Retro mad:
I'm afraid Valia is right. We have some very crafty foes. :Retro mad:
 

fred

The game is afoot
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Christ!!!! I'm suprised she and Trudie Chalder haven't been awarded medals for this video from the Royal College of Physicians as Simon Wessely has (from RCP) for his 'work' in "CFS".
No, instead, she's just been made Chair of the Royal College of GPs. See separate thread in this forum for news of the glorious appointment.
 

justy

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i have only just stumbled on this thread, and watched the first 5 minutes......i cant watch anymore. It actually made me cry. And thats the 2nd time today i have had to shed tears over the treatment we get from our GPs in the uk. I couldnt recognise the illness that man had at all. After all he was working and studying etc. Whilst i am completely housebound . I would be overjoyed if 8 hours sleep a night made me better! Infact i would be overjoyed if it was all just because i couldnt manage my time properly.

This crap feels like the worst kind of abuse. Its no wonder i have had no support whatsoever from my doctor. I though M.E was supposed to be a recognised neurological disease with proven immune abnormalities.
I pray that the XMRV research can finally prove them wrong. Can we not sue someone for this shit? i am so fed up with being mistreated by the medical proffession and not getting the care i need.
 

Desdinova

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I saw these two videos over a year ago I believe (If my memory serves me right that is) on Utube very insulting and very sad to say the very least. No one doubts that psychosomatic disorder exists and does happen. But for the Worlds Medical community to still say something like CFS is a psychiatric disorder is an unbelievable outrage. Just outrageously as it was and still widely is done with Fibromyalgia and IBS two more so called 'waste basket disorders.' For them to say that things as widely commonplace as these with the number of people suffering from them are psychosomatic disorders is to unspokenly imply mass hysteria amounts to a sizeable portion of the world’s population. And that is more than outrageous it’s criminal IMO.
 

Enid

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Can't view anymore. This has to be out of the Stone Age. The big switch off was how to MANAGE patients - thought Medicine was about trying to help/heal which is totally absent.
 

Dolphin

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Vincent Deary is giving a training day soon

One of the "stars" of this video, Vincent Deary, is giving two training days soon:

http://www.manchestercfsme.nhs.uk/pod/conferenceandtraining/

8 December 2010 (Part 1) and 9 February 2011 (Part 2)
CBT for CFS/ME: supervision workshops - Newcastle Upon Tyne

These two days are primarily intended as a two part clinical supervision
workshop.
Participants will be expected to come along with particular cases they are
willing to present and discuss as a group. The group will be facilitated to
work together to problem solve some of the key clinical issues that have
emerged from the discussion.

A booking pack
http://www.manchestercfsme.nhs.uk/document_uploads/Conferences_Training/CBTDecappform.doc is attached. For more information or paper copies of the
booking pack, please contact Julie Malcolm at the Northern CFS/ME Clinical
Network on 01912755181 or by email to julie.malcolm@nhs.net.

Due to the nature of the workshop places are limited to 10 and will be
allocated on a first come first served basis.
 
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Ive just watched the whole thing and can honestly say, I hope every single one of them ends up suffering from ME. And I won't feel bad that they are suffering, it will just feel like justice that they have to suffer both the debilitating physical and mental symptoms that we all struggle with, and at the hands of the doctors following their ridiculous 'treatment' plans. Hmmm I do wonder if psychiatrists have the power to think themselves better, as they seem to think we do?

And believe me, I wouldn't have spent the last few months stuck at home in pain and bored out of my head if it was supposedly that easy to modify my thoughts and behaviours through CBT and get 'better'.
 

meandthecat

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Though the official line is now, Yes, we believe this is a real disease and that GP's should develop treatment plans etc there is no evidence of change in my neck of the woods. The attitudes so clearly displayed in these videos have blinded a generation of Doctors to the reality we experience. I doubt that they can overcome such deep-seated prejudice and hope lies with the newly trained, though with the vicious treatment the BMA hands out to dissenters such as Dr Myhill, it's clear they haven't given up yet.

My most recent GP was the best yet and took me seriously as long as I didn't mention CFS, it was an unspoken agreement. a very big elephant in a very small room. He focused on immediate symptoms and pushed the hospital when they sidelined me but the inability to look at the big picture devalued the results; and now he's left and the new young'un looks scared of his own shadow.

This seems to be the reality of centralised socialised medicine in the UK and these videos as much as they are the product of an ideologically motivated clique with undue power over a section of the health system illustrate the rot beneath the surface.
A lack of transparency, a one size fits all mentality and too much power in the hands of the consultants which allows them to dominate new doctors.

My last encounter with a consultant illustrated the private/public face of the NHS, a fault line that runs through the whole system. I was the last in the clinic which was running late, a cancer clinic; I was offered NHS diagnostic treatment and subtly more expensive private treatment which I didn't take up and was then hustled out as he was late for his private clinic. If you begin a course of treatment privately it can be hard to get back into the state system which of course I have already paid for through my N.I contributions.

These videos are so obviously pathetic and stupid why are they taken seriously by some of the most intelligent and best trained graduates we have?
 

Leopardtail

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They advise ME patients not to go on so many benders at the pub.

Thanks TomK!!
This is a very important video and I'm glad it's up on the web again (after luminescentfeelings shut his youtube)

That is a great excerpt. They still sell this and it shows they are now as always true evil clowns. Chalder, Tyree and their publisher make money off this as it is sold for a lot of money to GP's for their education.

Tyree says: "they're trying to tell us it's physical and we're trying to tell them it's psychological." And Chalder agrees and says to just avoid the whole topic if a patient brings it up.

In pacing they counsel ME patients who are working overtime to stop going on benders at the pub several times a week! They know how disabled and intolerant of alcohol we are and yet they do this to give the GPs the impression that we're not sick or 'the undeserving sick.' There is much more especially in the last half of the second video where they sum up all the lies.
My goodness, I stopped drinking alcohol more than six years ago, I must be cured!
 
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They continue to encourage the medical profession to abuse us whilst they determindly prevent biomedical research. The swift move to deny XMRV was very fishy, as is trying to put genuine researchers off by pretending they have death threats from patients.