Traditional Chinese Medicine for CFS

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Several pages in this study about TCM for cfs.

thanks! I'll enjoy reading thru that over time.

I am supposed to be taking around 38 herbs targetting my Yin Deficiency and main symptoms outside the digestive problems. Thats on the shelf, waiting, with some lymph cleanse herbs added. But I had to stall the cleanse, so I stopped the tea for a while.

I have been off for the last year. But frankly, this is exciting: I'm going to be resuming that tea, and I'll better able to charactize the improvements I'll be enjoying.

I really wish I could get thru this window of Detox. It keeps stalling.

***
Short Story- I'm alone at the CTM office, next to the amazing books. I randomly selected one book on the shelf out of 250. I did the thing where you randomly open it to one page. And there it is describing, in a rough English translation, directly from some oh 300 year old Chinese Text- Bulbous Lillii Syndrome.

And I proceed to read this description and YUP there we are, there I am. Its describing WIRED but TIRED in this absolutely amazing way.

How you lie down on the bed because your somehow unable to function, and as you try to rest and lie there, NOPE instead your in this almost wired yet exhausted state.

Cure: boil up some Lily Bulb and drink the frothy stuff.

Now, its unlikely I can find this description online- but I may once again try, as it was so amazing to read.

(p.s. so when I asked, I discovered I', given bulbous lillii- sometimes, not all the time, he varies things over time, as we sort of vary the focus at any one moment)
 

wabi-sabi

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I can't say it looks like there's anything terribly helpful here.

1) The ancient texts don't describe ME/CFS, as the authors say "Obviously, although such symptoms do not exactly mimic the Centers for Disease Control and Prevention (CDC) research criteria for CFS, they are extremely similar to CFS, as Table 2 indicates." As we all know, many diseases cause fatigue. Something translated from ancient texts as "fatigue syndrome" with as many symptoms listed in Table 2, could be any disease at all, or a combo of diseases. It doesn't include PEM and does include vomiting blood. If we are going to get treatments for ME/CFS, we need to be clear that we are dealing with ME/CFS.

2) Even if we accept this paper is about ME/CFS and not generalized fatigue or fatigue from any other cause, the treatments are symptomatic and nothing we haven't heard before. Work on sleep, emotional balance and nourishing meals. I'm already doing that and a miracle has not occurred. TCM herbs, like any medication, have specific mechanisms of action. There's no info in this paper about whether these herbs target mitochondrial function or orthostatic intolerance or any of the things we know break down in ME/CFS. As such, it's sort of a guess.

3) The evidence they include in the review is just...odd. Ginseng showed inconsistent effects on fatigue. Angelic root helps menopause (good to know, but this is a review on CFS, not menopause) and Peony helps rats with cognitive problems (did the rats have ME/CFS? maybe they were old rats with dementia). Since reviews want to include best quality evidence, this strikes me as grasping at straws.

4) While they described looking in ancient monographs, they did not provide a search strategy for modern studies, meaning we have no idea if they were able to choose quality studies or just did a quick google. Doing a systematic review properly means describing your search well enough so that someone else can both replicate it and check your work. I don't see that's been done here.
 
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I don't see that's been done here.
the paper makes the first mistake of assuming that a term like Fatigue- represents whats wrong with those of us who have ME.

That can't be fixed. So go start a bonfire if you like.

Sure, who knows what fatigue is being referred to.

but there are many many of our related symptoms discussed here to some limited degree.

I don't need western science to tell me chinese traditional herbs can help me feel better.

I'll be dead before any of that ever happens.

Over there: I get helped.

Behind Door number three (my Primary Care Physicians office)..pretty much they have nothing to offer me.
 
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I don't need western science to tell me chinese traditional herbs can help me feel better.
just to clarify- I seriously doubt any pill or herbs or whatever can in fact- put my fingerprints back.

So I doubt they can- reverse and repair lower brain stem collapse, that I think occurs in our illness or can eventually.

So its about- reducing the lousy feeling so its less lousy. Cures- a cure is welcome to show up here anytime.

Feel Free, Cure.
 
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This is the scary thought, isn't it?

If/when we get a cure, exactly how much of the damage will be repairable? I just don't know.
This is- well a real mysterious part of our greater mystery.

Im a long haul of ME CFS. From everything we've observed recently, I do believe there is something to the Mechanical Basis, and collagen has broken down here over the decades. Much worse than in a healthy person.

And in my case, I believe I'm an indiagnosed spinal birth issues- may have started up something that has just crept along in a stealth fashion over the decades. So I was mild for a very very long time, if you like the term.

So whats going on with all these other types of degradations, in folks who have addressed the mechanical problem- well I'm very unclear and I suspect most people who have gotten those treatments aren't older folks.

So maybe there can be some recovery and improvement in tissue and such that- it might improve.

But when you get to my stage, these things aren' t likely going to vanish overnight. But they're welcome to do so.