F
FEDUPJ
Guest
Hi,
I have just come across your forum. Hope to find some good news on here.
I first started to feel ill about 7/8 years ago. Had a total crash slept for a month, flashing lights, pain in right eye, swollen eyelid. Pulling sensation in corner and sore etc. Was told after various blood tests and seeing several doctors, eye, ear nose and throat etc that it was blepharitus and that it would go away. Vision blurred never really got back to normal. Was told I had horners syndrome in right eye.
Nov 2007, feeling so tired etc and many other symptoms, saw a private Dr, who told me I had hypothyroid, but he could only give me herbal supplements to help.
Dec 2007, had a cold which took longer to come out than it acutually lasted, a few weeks later I thought I was coming down with flu, slept again solidly for a month, however this time the eye problems are in my left eye. Vision awful, terrible pain in eye, sticky dry feeling, eyelid swelled and went dirty brown colour, saw my GP who said as I had seen an Voodoo dr (re nov) he would not treat me. So I looked for another Dr.
Since then I have been pushed from pillar to post at varous drs and hopitals here in the UK. Eye Dr's, ear nose and throat, Endo's. Load of blood tests (some even going missing 22 viles in all). Only to be told this Jan that I have possibly FMS and CFS. And basically to go away and get on with it and I was discharged from the hospital. I was rushed back to the eye clinic in January of this year, only to be told that he does not have a clue what it is, so I will be discharged, however he has noticed that I could have horners in both eyes now (something I was told years prior could not happen).
I have bad weeks, my eyes this week have started to play up again. I have spent thousands on glasses, the last time being last week. I have been back to the optician who got rather annoyed with me and shouted saying that he could not work out what was wrong and that it could be CFS. As I'm not being treated or seen by anyone I feel totally alone.
I have not been able to work since 2002, without my elderly parents I would have been out on the streets, I don't know how long I can carry on like this, the vision part to me is the worse. When your worn out and your vision is out what the heck can I do. I'm only in my mid 40s and I cannot envisage me carrying on with the rest of my life if I have to spend it like this, unable to work, and earn money, and have no life what so ever.
I have lost my husband to be due to this and close friends. Any help would be appreicated.
I just want it all to GO AWAY
I have just come across your forum. Hope to find some good news on here.
I first started to feel ill about 7/8 years ago. Had a total crash slept for a month, flashing lights, pain in right eye, swollen eyelid. Pulling sensation in corner and sore etc. Was told after various blood tests and seeing several doctors, eye, ear nose and throat etc that it was blepharitus and that it would go away. Vision blurred never really got back to normal. Was told I had horners syndrome in right eye.
Nov 2007, feeling so tired etc and many other symptoms, saw a private Dr, who told me I had hypothyroid, but he could only give me herbal supplements to help.
Dec 2007, had a cold which took longer to come out than it acutually lasted, a few weeks later I thought I was coming down with flu, slept again solidly for a month, however this time the eye problems are in my left eye. Vision awful, terrible pain in eye, sticky dry feeling, eyelid swelled and went dirty brown colour, saw my GP who said as I had seen an Voodoo dr (re nov) he would not treat me. So I looked for another Dr.
Since then I have been pushed from pillar to post at varous drs and hopitals here in the UK. Eye Dr's, ear nose and throat, Endo's. Load of blood tests (some even going missing 22 viles in all). Only to be told this Jan that I have possibly FMS and CFS. And basically to go away and get on with it and I was discharged from the hospital. I was rushed back to the eye clinic in January of this year, only to be told that he does not have a clue what it is, so I will be discharged, however he has noticed that I could have horners in both eyes now (something I was told years prior could not happen).
I have bad weeks, my eyes this week have started to play up again. I have spent thousands on glasses, the last time being last week. I have been back to the optician who got rather annoyed with me and shouted saying that he could not work out what was wrong and that it could be CFS. As I'm not being treated or seen by anyone I feel totally alone.
I have not been able to work since 2002, without my elderly parents I would have been out on the streets, I don't know how long I can carry on like this, the vision part to me is the worse. When your worn out and your vision is out what the heck can I do. I'm only in my mid 40s and I cannot envisage me carrying on with the rest of my life if I have to spend it like this, unable to work, and earn money, and have no life what so ever.
I have lost my husband to be due to this and close friends. Any help would be appreicated.
I just want it all to GO AWAY