One of the biggest issues I am discussing here in the UK is blood donation and our nations blood supply.
Currently, thanks to Wessley, the UK are completely ignorant of XMRV and it’s prevalence over here. Even though there are now people in the UK whom are XMRV positive. Yet I cannot donate my blood. I am apparently deferred until I am completely well. Yet, there is also no diagnostic test to prove if I am well, so how would anyone possibly know?
Now, am I correct in saying the US Blood Society are doing their own replication study to verify your nations blood supply? Yet over here I spoke at length to a lady from the UK Blood Society whom was completely oblivious to XMRV. Now it could have been a person whom isn’t privy to XMRV and whether our nation is testing the UK’s blood. But it is very worrying. And even if they are testing our blood supply, are they using the correct techniques?
So, as things stand:
XMRV doesn’t officially exist here in the UK, yet no one with ME can donate their blood.
Still much of the UK perceive ME to be either a harmless problem or a myth, yet my blood is deemed unfit for donation.
And finally, the general British public have no idea that the UK National Blood Society don’t know whether there is a new retrovirus of unknown pathology within the nations blood supply.
None one seems to know or care!!
If any of you guys know anyone from the media in the US, we really need this to be made public. I can’t sit and consider some child receiving a blood transfusion here in the UK, and not knowing there is a possibility it is contaminated with XMRV.
Cheers,
BB
Currently, thanks to Wessley, the UK are completely ignorant of XMRV and it’s prevalence over here. Even though there are now people in the UK whom are XMRV positive. Yet I cannot donate my blood. I am apparently deferred until I am completely well. Yet, there is also no diagnostic test to prove if I am well, so how would anyone possibly know?
Now, am I correct in saying the US Blood Society are doing their own replication study to verify your nations blood supply? Yet over here I spoke at length to a lady from the UK Blood Society whom was completely oblivious to XMRV. Now it could have been a person whom isn’t privy to XMRV and whether our nation is testing the UK’s blood. But it is very worrying. And even if they are testing our blood supply, are they using the correct techniques?
So, as things stand:
XMRV doesn’t officially exist here in the UK, yet no one with ME can donate their blood.
Still much of the UK perceive ME to be either a harmless problem or a myth, yet my blood is deemed unfit for donation.
And finally, the general British public have no idea that the UK National Blood Society don’t know whether there is a new retrovirus of unknown pathology within the nations blood supply.
None one seems to know or care!!
If any of you guys know anyone from the media in the US, we really need this to be made public. I can’t sit and consider some child receiving a blood transfusion here in the UK, and not knowing there is a possibility it is contaminated with XMRV.
Cheers,
BB