The priory group !

[pollycbr125]

check this out i posted this on facebook earlier perhaps someone ought to educate the priory about ME it is not a psychiatric disorder !!!!!

http://www.priorygroup.com/pg.asp?p=2068

What we treat

Priory hospitals have been treating all aspects of psychiatry, psychology and mental health for over 30 years. Treatments are tailored to the individual to ensure the quickest and safest recovery possible.
We offer treatments for both adults and children on an inpatient, outpatient and day patient basis. In addition we treat patients who are detained under the Mental Health Act (1983).
We are specialists in providing treatment programmes for a wide range of disorders including:
Addictions
Click on the download button on the right of the page to download self-help leaflets for your patient.
Eating disorders
Child and Adolescent Mental Health Services (CAMHS)
Please click here for information on Priory Specialist Education
General Psychiatry
We also provide treatment for general psychiatric issues including:
Anger management
Anxiety and panic attacks
Bi-polar disorder
Body dysmorphic disorder (BDD)
Chronic fatigue syndrome (ME)
Depression
Obsessive compulsive disorder (OCD)
Old age psychiatry
Panic attacks
Personality disorders
Phobias
Post-natal depression
Post traumatic stress disorder (PTSD)
Schizophrenia
Somatoform disorder
Stress
Women's mental health issues

doesnt this shit just make you angry! :Retro mad:

 

[garcia]

Very, very angry!!

 

[pollycbr125]

while ever theres crap like this on the net we really dont stand a chance here in the uk . its not long ago the nhs choices website had it listed under mental health they have now moved it to the correct category but only after several complaints .If the priory has this on its website its no wonder half of the celebs think theyve had a 'touch' of ME .......:Retro mad: :Retro mad: :Retro mad:

 

[busybee]

Are you going to email them pollycbr125?

 

[MEKoan]

Unbelievable!

 

[justinreilly]

This is on their ME info page:

While there are more cases occurring in women than in men, this could be because men are not seeking help.

Why does it occur?

The cause of CFS is still relatively unclear, but there are theories surrounding exposure to chemicals and stress which could contribute to the impaired immunity of the condition. Some researchers believe that patients who obsess and fixate on their CFS can worsen their illness while a lack of support from friends and family can delay recovery. Finding the right balance is one of the key steps in overcoming the condition.

How is it treated?

The most effective known management strategy for treating CFS is cognitive behavioural therapy (because this helps patients understand their specific symptoms and develops strategies for patients to improve every day life). Stepped exercise programmes can also be an alternative treatment.

There is a considerable degree of stigma attached to the illness because patients are viewed as lazy, hypochondriacs or attention seekers. Critics have argued that due to a lack of an objective test for the condition, many patients can feign the known symptoms for financial, social or emotional benefits.

How Priory can help

At Priory we know that everyone's situation is different, which is why we ensure that everyone has a unique treatment plan tailored to their needs.

The type and length of treatment is dependent on the individual's circumstances and the severity of the condition. Some patients are treated as outpatients, which means they come to Priory for hourly sessions with their consultant, psychologist or therapist. Others require a more structured treatment approach which can include staying at one of the Priory hospitals for the duration of their treatment where they take part in the psychological group programme as well as regular sessions with their consultant.

I sent them an email:

Hello!

ME is not a psychiatric disorder! There is a lot of wrong info on your site regarding it. The Canadian Consensus Criteria article has great info on it. Please change your website! Misinformation like this does a great disservice to sufferers of this neuro immune disease.

www.mefmaction.net/documents/me_overview.pdf

Please email these idiots at info@priorygroup.com

 

[pollycbr125]

Are you going to email them pollycbr125?

yes i will be emailing them . They will no doubt be making a hell of a lot of money out of cfs/me patients in which case they should have the correct information on their site. Though tbh if this is the info they have on their i really wouldnt want to be treated by them would you.

@ Justin thanks for mailing them lets hope they get quite a bit of unwanted mail this week .The more misinformation we can get changed on the net the better . yes its small steps but it all helps the bigger picture .Actually reding what they have on their site i have to say is one of the worst descriptions of this illness i havde read in a long time !


While there are more cases occurring in women than in men, this could be because men are not seeking help.

Why does it occur?

The cause of CFS is still relatively unclear, but there are theories surrounding exposure to chemicals and stress which could contribute to the impaired immunity of the condition. Some researchers believe that patients who obsess and fixate on their CFS can worsen their illness while a lack of support from friends and family can delay recovery. Finding the right balance is one of the key steps in overcoming the condition.

How is it treated?

The most effective known management strategy for treating CFS is cognitive behavioural therapy (because this helps patients understand their specific symptoms and develops strategies for patients to improve every day life). Stepped exercise programmes can also be an alternative treatment.

There is a considerable degree of stigma attached to the illness because patients are viewed as lazy, hypochondriacs or attention seekers. Critics have argued that due to a lack of an objective test for the condition, many patients can feign the known symptoms for financial, social or emotional benefits.


the last line especially............ many patients can feign the known symptoms for financial, social or emotional benefits.:Retro mad:

and they wonder why we get so angry . I actually think the info they have is dangerous ....Stepped exercise programmes can also be an alternative treatment.


they most definately need correcting if a genuine ME patient went there for treatment the consequences could be potentially devasting .

 

[busybee]

There is a considerable degree of stigma attached to the illness because patients are viewed as lazy, hypochondriacs or attention seekers. Critics have argued that due to a lack of an objective test for the condition, many patients can feign the known symptoms for financial, social or emotional benefits.

As they recognise there is a social stigma attached to having ME/CFS they should be open to your suggestions for rewording. It's the critics that say patients can feign, not the Priory.

 

[flex]

Flex complaint coming their way today.

 

[starryeyes]

Funny, I was just reading this from Dr. Peterson:

Daniel Peterson, MD, medical director of WPI, "Im excited about the possibility of providing patients who are positive for XMRV a definitive diagnosis, and hopefully very soon, a range of effective treatments options.

Dr. Dan Peterson: "it isn't until you look at the immune system that you realize there's substantial dis-regulation of the immune system." "federal agencies never showed particular interest in this disease." "Once it was demonstrated that the patients had impairment of their natural killer cell function, we knew that there was an immune impairment." "The illness is totally compatible with a viral illness that just doesn't go away."

Back in the 1990s, I was associated with Temple University and the researchers there that looked at the antiviral pathway - the natural defense against viruses - and they found very substantial abnormalities in the patients who had Chronic Fatigue Syndrome.

http://www.npr.org/templates/story/story.php?storyId=113650222

 

[MEKoan]

Why does it occur?

The cause of CFS is still relatively unclear, but there are theories surrounding exposure to chemicals and stress which could contribute to the impaired immunity of the condition. Some researchers believe that patients who obsess and fixate on their CFS can worsen their illness while a lack of support from friends and family can delay recovery. Finding the right balance is one of the key steps in overcoming the condition.

How is it treated?

The most effective known management strategy for treating CFS is cognitive behavioural therapy (because this helps patients understand their specific symptoms and develops strategies for patients to improve every day life). Stepped exercise programmes can also be an alternative treatment.

There is a considerable degree of stigma attached to the illness because patients are viewed as lazy, hypochondriacs or attention seekers. Critics have argued that due to a lack of an objective test for the condition, many patients can feign the known symptoms for financial, social or emotional benefits.

the last line especially............ many patients can feign the known symptoms for financial, social or emotional benefits.:Retro mad:

The message the Priory gives, and I believe they intend to give, is that this theory of causality, spelled out and left unchallenged, is true.

Crap. Bad crap. Bad dangerous crap.

:innocent1:

 

[starryeyes]

Not to mention wrong crap.

 

[Andrew]

I'm working on an email. Still thinking what I will say.

 

[hanhanhannah11]

Hi

So I've been diagnosed with depression on top of/as well as my CFS symptoms and I am seeing therapists at The Priory because I didn't know where else to go. The people I've met have been very sympathetic but I have got the feeling that they don't know much about the illness and seem to think it's more of a phycological thing. I feel supported by them when they are treating my depressive symptoms, but they do seem to think that ALL my symptoms are as a result of the depression rather than the depression being a result of being unwell with this for so long.

I just wondered if what other people's experiences have been like with The Priory? At this point I'm not sure if I should persist or try to do something else. (Any suggestions would be most welcome)

I realise that this thread if from quite a long time ago lol but hopefully someone will see it!

Thank you,
Hannah xo