Further, 46% of patients reported increases in their ME/CFS symptoms, 31% reported musculoskeletal, representing the M in ME, and 19% reported neurological adverse events, representing the E in ME [64]. So that the proportion of participants negatively affected by CBT and GET is between 46% and 96%, and most likely estimated at 74%, as recently reported by a large survey conducted by the British ME Association, which involved 1,428 patients [63] and medication with such high rates of adverse events should be withdrawn from the market with immediate effect.
The same point is made in the abstract:
In addition, 46% of patients reported an increase in ME/CFS symptoms, 31% reported musculoskeletal and 19% reported neurological adverse events. Therefore the proportion negatively affected by CBT and GET would be between 46% and 96%, most likely estimated at 74%, as shown in a large survey recently conducted by the ME Association. Medication with such high rates of adverse events would be withdrawn with immediate effect.
The PACE trial found that the proportion negatively affected by CBT and GET was between 46% and 96%, most likely estimated at 74%, as shown in a large survey recently conducted by the ME Association [63]. Medication with such high rates of adverse events would be withdrawn immediately.