Cort
Phoenix Rising Founder
- Messages
- 7,383

Why Should We Help?
Reason # 1 - Dr. Bateman’s Fatigue Consultation Clinic is Right in the Middle of Some Really Critical Research

Last month, Dr. Bateman provided 100 CFS patients for a significant expansion of an XMRV study with Dr. Light, Dr. Singh and the ARUP lab. (See - A Light in the Darkness: Good News Ahead for XMRV?).
Antiquated Computer System - The research branch of the FCC, however, needs our help. It is running on a crumbling, cobbled together computer system that is straining under the load of today’s demands (using the day before yesterday’s technology - more accurately, 1990’s technology). It's not uncommon for small organizations to be stymied by database needs; they simply don't have the technical resources, funding and know-how to maximize their productivity in this increasingly important

The situation at the FCC came to our attention when, CBS, one of our regular Phoenix Rising Forum particpants (with a background in research and database design as well as an appreciation for the long overdue need in CFS research for well characterized cohorts), inquired about participating in an upcoming study and while on the phone, asked innocently “how is your database system?”
While the dedicated staff is working hard to stay on top of the growing demands created by the recent interest in XMRV and the work of Drs. Light, Light and Singh, the truth is, they (and their research) would benefit immeasurably from a new Contact Tracking system.
Reason # 2 - A small amount of help from us (money) could make a real difference
By helping the FCC with their infrastructure needs we’ll help them help themselves (and us!). The FCC, for instance, generates a significant portion of its revenue from upon tracking study participant contacts. The FCC Research Department should be generating Attachment 2195revenue each time FFC Fundraiser for CFSone of those patients steps into the office, but it's not. Simply providing them the means to do that could repay this investment many times over. At a time when interest is exploding due to XMRV the FCC is approaching a time where more studies (studies we vitally need) could easily become an unmanageable burden leading to lost opportunities for everyone with CFS.
More importantly, getting the FCC an up to date computer system will help Dr. Bateman characterize her patients better, giving her the opportunity to tease out subsets and integrate new data with the years of data she's already collected on long-time patients. Using this kind of data she can begin to answer questions such as why one patient is responding to a drug while others are not. These are things every ME/CFS researcher needs to be able to do in our information age.
Reason # 3 - Dr. Bateman Deserves It
One last reason to support Dr. Bateman is that she deserves it. She got into the field after watching her sister struggle with illness. For almost 10 years she's been operating FFC s - one of the

Dr. Bateman isn’t the type of person who spends time or energy promoting herself. She didn’t ask for help but it is clear that she deserves it and that she could use it.
Help us Help the FCC (Help Us)
This is our chance to make a real difference. At a time when far greater demands are in sight, the

The GOODIES
* Lenovo T410 Laptop w/docking station,
monitor, keyboard and Mouse, warranty,
port replicator and Database software ($1954)
* Lenovo ThinkCentre A63 Tower desktop
with monitor ($988)
* Grand Total - $2942
We will be updating you regularly about the totals raised.
Update! The Fundraiser is over! In less that two days we raised over $3000 In Donations! THANKS EVERYBODY!!
* All donations are fully tax deductible. Donations are processed through OFFER. Please note that this remarkable inept PayPal form requires you to input the amount you want to donate and THEN requires you to click on 'Update Total' in order for your money to be entered.
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The OFFER Connection
OFFER, the non-profit organization Dr. Bateman created in Salt Lake City, which is housed within the FFC demonstrates Dr. Bateman's commitment to advancing patient and physician education about ME/CFS. Since 2002 OFFER has quietly become one of the most dynamic CFS organizations in the US.
In 2007 Linda Milne spoke about OFFER at a CFSAC meeting. Since 2002 OFFER has
* Attracted a high quality board of directors including Dr. Bateman, a clinical psychologist, a FM physician, school district executives, a bank executive, a disability attorney and others.
* Produced and recorded 60 monthly meetings with experts focusing on coping and therapy
* Produced an on-line newsletter sent to several thousand people
* Presented four annual provider/patient conferences on CFS research and treatment
* Had the distinguished Senator from Utah, Orrin Hatch, close the provider conference and open the patient conference.
Dr. Klimas referred to FFC/OFFER’s network of research, treatment and education as our first real Center of Excellence and reported her surprise at the ‘intense interest’ she’d saw from the medical providers at their conference. She felt that their ‘agenda’, absolutely has to be done’ across the country. Dr. Jason said 20 OFFERS spread across the country could make a ‘huge’ difference.
- Check out OFFER - one of the best little ME/CFS websites with an extensive collection of conference video’s.
By CBS and Cort