The Nottingham Tool Kit: how the UK is selling ME patients down the river with £200 million for MUS

[SamanthaJ]

It has been pointed out to me that the term 'Dryness' in a medical context usually refers to 'vaginal dryness'.:thumbdown:

Was someone at BS HQ too embarassed/squeamish/repressed to actually write it?

 

[TiredSam]

Was someone at BS HQ too embarassed/squeamish/repressed to actually write it?

I must say I do feel rather exluded. First I wasn't allowed to have a wandering womb, and now this. You'd almost suspect these psychs don't really want men to be given an MUS diagnosis, which I find blatently sexist. What do I have to do as a man to have my psychosomatic illness taken seriously - storm into my doctor's and throw a hissy fit? I will you know.

 

[Solstice]

It has been pointed out to me that the term 'Dryness' in a medical context usually refers to 'vaginal dryness'.:thumbdown:

Sorry chaps! I am unclear what your equivalent is.

Should we start a new thread on this? Perhaps with a poll.

Shooting dust?

 

[Sean]

Sorry chaps! I am unclear what your equivalent is.

You really don't want to know.

 

[SamanthaJ]

In other words, according to these guys, patients are more likely to have MUS if they're the kind of patients some people in the NHS already don't like very much: people with weight issues, menopausal women, post-menopausal women, people with mental health issues, older people, and, of course, people with fatigue. So, most of the population then.

What's 'negative ESR'?

 

[RogerBlack]

In other words, according to these guys, patients are more likely to have MUS if they're the kind of patients the NHS already doesn't much like: people with weight issues, menopausal women, post-menopausal women, people with mental health issues, older people, and, of course, people with fatigue. So, most of the population then.

What's 'negative ESR'?

Emotional self-realisation at a guess.

 

[slysaint]

psychs don't really want men to be given an MUS diagnosis

Erectile dysfunction could be classed as an MUS......................but they wouldn't dare.

Lifestyle changes
Erectile dysfunction can often be improved by making changes to your lifestyle, such as:

• losing weight if you are overweight
• giving up smoking
• cutting back your alcohol consumption
• not taking illegal drugs
• exercising regularly
• reducing stress
  

 

[Tyto alba]

A negative ESR probably refers to Erythrocyte Sedimentation Rate; a blood test to help detect inflammation.

 

[Countrygirl]

I must say I do feel rather exluded. First I wasn't allowed to have a wandering womb, and now this. You'd almost suspect these psychs don't really want men to be given an MUS diagnosis, which I find blatently sexist. What do I have to do as a man to have my psychosomatic illness taken seriously - storm into my doctor's and throw a hissy fit? I will you know.

There is only one thing for it @TiredSam . You are just going to have to bite the bullet: sign up for gender reassignment. Have a sex change!

You too could then have a.............................. ............and a ..................................., even if you have to undergo a bit of lopping .

Be positive about it! Don't think of what you would lose, but what you would gain.

 

[slysaint]

wandering womb

You've done it now; I've got Lee Marvin singing 'I was born with a wandering womb..' in my head..

 

[Countrygirl]

You really don't want to know.

Yes I do!

Give!

 

[TiredSam]

There is only one thing for it @TiredSam . You are just going to have to bite the bullet: sign up for gender reassignment. Have a sex change!

You too could then have a.............................. ............and a ..................................., even if you have to undergo a bit of lopping .

Be positive about it! Don't think of what you would lose, but what you would gain.

Thanks, but I think I'll try the hissy fit and a bit of cape-swishing first, see where that gets me.

In other words, according to these guys, patients are more likely to have MUS if they're the kind of patients some people in the NHS already don't like very much: people with weight issues, menopausal women, post-menopausal women, people with mental health issues, older people, and, of course, people with fatigue. So, most of the population then.

Exactly.

 

[Valentijn]

A negative ESR probably refers to Erythrocyte Sedimentation Rate; a blood test to help detect inflammation.

Mine's usually elevated, so no MUS for me So long, suckers!

 

[lilpink]

It has been pointed out to me that the term 'Dryness' in a medical context usually refers to 'vaginal dryness'.:thumbdown:

I did ponder that that could be the meaning. In which case pretty much every menopausal woman in the world can be dx with MUS simply on that basis alone. Nothing to do with declining oestrogen of course. I posted elsewhere about the gender bias within the construct of 'MUS' / 'MUPS'... this would seem to add fuel to that notion. If 'dryness' does mean what we assume here then this is nothing short of institutionalized misogyny . Who'd have thunk?

 

[lilpink]

What do I have to do as a man to have my psychosomatic illness taken seriously - storm into my doctor's and throw a hissy fit?

There's always drag:

 

[SamanthaJ]

I did ponder that that could be the meaning. In which case pretty much every menopausal woman in the world can be dx with MUS simply on that basis alone. Nothing to do with declining oestrogen of course. I posted elsewhere about the gender bias within the construct of 'MUS' / 'MUPS'... this would seem to add fuel to that notion. If 'dryness' does mean what we assume here then this is nothing short of institutionalized misogyny . Who'd have thunk?

The thing that depresses me the most about this part of it is the thought of a woman suffering in silence for months or years before working up the courage to see her GP, and the GP thinking it's not real.

 

[Seven7]

- storm into my doctor's and throw a hissy fit? I will you know.

Only women are capable of hissy fit. In a guy is called assertiveness and stablishing boundaries.

 

[trishrhymes]

A negative ESR probably refers to Erythrocyte Sedimentation Rate; a blood test to help detect inflammation.

If they really do mean this, a negative ESR probably means you're dead, since it presumably means the red blood cells float instead of sedimenting! I suspect it's some sort of psychobabble abbreviation.

 

[Tyto alba]

If they really do mean this, a negative ESR probably means you're dead, since it presumably means the red blood cells float instead of sedimenting! I suspect it's some sort of psychobabble abbreviation.

Maybe. I inferred that it was 'negative' in terms of ESR being within normal range.

 

[TiredSam]

Only women are capable of hissy fit. In a guy is called assertiveness and stablishing boundaries.

Blimey, I've already been doing some of that. I just can't win can I? How on earth am I supposed to get a prescription for anti-depressants and CBT at this rate? I'll just have to try @lilpink 's drag route, luckily I've already got some blue tights and red boots. Don't mean to be squeamish, but @Countrygirl 's suggestion really is a last resort.