The ME/CFS Factsheet 2009

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The Factsheet: Literature from updates 2009 from Axfords Abode, was posted to cocure today.

It was compiled byEM. Goudsmit, Psychologist/Archivist, London. How she labeled herself intrigued me, so I found a short bio which I will include at the bottom in case anyone else is interested.

The Factsheet looks like another great resource. It is a list of research in specific areas and includes juicy titles like those below. Also covered is CBT, pacing, sub-groups, related MS research, GET, and flaws in the CDC 2005 criteria.

Further evidence of a maladaptive response to exertion.
Jammes, Y, Steinberg, JG., Delliaux, S and Brgeon, F. Chronic fatigue syndrome combines increased exercise-induced oxidative stress and reduced cytokine and Hsp responses. Journal of Internal Medicine, 2009, doi: 10.1111/j.1365-2796.2009.02079.x. 19th May.

ME is a more disabling condition than cancer, MS and other diseases.
Goudsmit, EM., Stouten, B and Howes, S. Illness intrusiveness in myalgic encephalomyelitis. An exploratory study. Journal of Health Psychology. 2009, 14, 2, 215-221.

New evidence for muscle pathology.
Pietrangelo T, Toniolo L, Paoli A, Fulle S, Puglielli C, Fano G, Reggiani C. Functional characterization of muscle fibres from patients with chronic fatigue syndrome: case-control study. International Journal of Immunopathology and Pharmacology, 2009, 22, 2, 427-436.

More evidence of a physiological abnormality relating to fatigue.
Pietrangelo, T., Mancinelli, R., Toniolo, L., Vecchiet, J., Fano, G and Fulle, S. Transcription profile analysis of vastus lateralis muscle from patients with chronic fatigue syndrome. International Journal of Immunopathology and Pharmacology, 2009, 22, 3, 795-807.


and an excerpt from the NICEGUIDELINES blogspot, Fri Nov 20, 09

Dr Ellen Goudsmit joins ME Association panel of advisers

The ME Association have appointed Dr Ellen Goudsmit as a consultant on psychological issues. Dr Goudsmit is a registered health psychologist with a background in medical and psychological research.

Dr Goudsmit is a visiting research fellow at the University of East London, and is a co-editor of ME and CFS References, a list of all published papers on ME, CFS and related conditions, compiled for the Melvin Ramsay Archive since 1989. She
  • has been a long time critic of the CBT-model for CFS.
  • devised the strategy of pacing for ME
  • and introduced the concept of psychologisation (the emphasis on where there is little or no evidence to justify it).

Dr Goudsmit studied clinical psychology and psychophysiology for her Dutch Masters degree. Her PhD described three studies of people with Ramsay-defined ME and post-viral fatigue syndrome.

In 2009, she was elected a fellow of the British Psychological Society (BPS). She is also a member of the International Association for CFS/ME.

Dr Goudsmit is an advocate for specialist clinics where physicians and other health professionals can choose from an arsenal of interventions depending on the symptoms, circumstances and preferences of the patient. As she was part of the BPS team which scrutinised the NICE guidelines and as she has already analysed the studies on CBT and GET, we hope that we will be able to use her knowledge to provide expert advice on the imminent publication of the PACE trial.

Dr Goudsmit, who was born in Amsterdam, has had ME since childhood. She became a British citizen two years ago.
 

Dolphin

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I've learned a lot of what I know about the flaws in the research and writings of the "CBT School of Thought" from reading Ellen's/Dr. Goudsmit's writings over the years. Reading abstracts can be a bit tough especially if you are new but she also has interestings essays, book reviews, etc on her site.

(That's not to say that I haven't disagreed with her in the past but then I've disagreed with most people at one stage or another!)