Countrygirl
Senior Member
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The Disgraceful Situation in the UK.
In the UK, we have several very severe patients who are at best experiencing medical neglect while several inpatients are enduring abuse from their consultants. These doctors usually refuse to listen to the very few expert consultants in the UK and clearly prioritise their egos' protection over their patients' welfare.
Only last week, a young teenager died with severe ME when her GP refused to attend her at home. She had previously experienced harm at the most notorious paediatric clinic in the UK and had deteriorated as a consequence.
Other very sick youngsters are under a DOLS (Deprivation of Liberty) order. They are trapped in hospital, enduring abusive treatment with their families threatened with court proceedings if they try to rescue them. Complaints to the appropriate body fail to remedy the situation and frequently trigger a vindictive response that further harms the patient. We have the case histories and evidence of this behaviour.
Others are being starved because the doctors refuse to acknowledge that they cannot eat and require appropriate tube feeding. Some have chosen to die at home of starvation rather than endure the abuse they experience in hospital. Psychiatrists inform the coroner that the patient suffered from the ARFID - Avoidant/restrictive food intake disorder - which is listed as the cause of death rather than ME.
Despite the 2021 NICE guidelines, GET is still being imposed under various labels such as 'Activity Management' or 'Pacing Up' Others are having their ME diagnoses removed and replaced with FND (Functional Neurological Order) aka conversion disorder aka hysteria. The treatment for FND is exercise and so severe ME patients are being instructed to attend clinics where they are expected to follow a course of GET, to their detriment. Only yesterday, a severe wheelchair patient was informed by a neurologist that he was removing her ME diagnosis, and replacing it with FND. He also told her that she is to attend exercise and rehabilitation sessions which he will oversee. He won't let her stay in a wheelchair. To refuse to obey can trigger a DOLS or even sectioning.
Yesterday, I was sifting through a box of ME papers and found this letter which I will share here. It reveals the attitude of the medical profession that is still prevalent.
I have removed the name of the GP, his colleagues, and the recipient's name. The attitude towards ME patients deliberately created by the BPS school and the small cabal of psychiatrists, and portrayed by the author of the letter, still predominates to the serious detriment of the patients.
Whatever happened to the old adage 'First do no Harm'?
The GMC turns its back on these patients and effectively sanctions the abuse.
Once you have read this, you might like to read the file I have uploaded that explains why the medical profession is so susceptible to this abusive and egotistical behaviour. It is called ME Past, Present and Future and is written by infectious disease consultant and ME expert Dr William Weir.
In the UK, we have several very severe patients who are at best experiencing medical neglect while several inpatients are enduring abuse from their consultants. These doctors usually refuse to listen to the very few expert consultants in the UK and clearly prioritise their egos' protection over their patients' welfare.
Only last week, a young teenager died with severe ME when her GP refused to attend her at home. She had previously experienced harm at the most notorious paediatric clinic in the UK and had deteriorated as a consequence.
Other very sick youngsters are under a DOLS (Deprivation of Liberty) order. They are trapped in hospital, enduring abusive treatment with their families threatened with court proceedings if they try to rescue them. Complaints to the appropriate body fail to remedy the situation and frequently trigger a vindictive response that further harms the patient. We have the case histories and evidence of this behaviour.
Others are being starved because the doctors refuse to acknowledge that they cannot eat and require appropriate tube feeding. Some have chosen to die at home of starvation rather than endure the abuse they experience in hospital. Psychiatrists inform the coroner that the patient suffered from the ARFID - Avoidant/restrictive food intake disorder - which is listed as the cause of death rather than ME.
Despite the 2021 NICE guidelines, GET is still being imposed under various labels such as 'Activity Management' or 'Pacing Up' Others are having their ME diagnoses removed and replaced with FND (Functional Neurological Order) aka conversion disorder aka hysteria. The treatment for FND is exercise and so severe ME patients are being instructed to attend clinics where they are expected to follow a course of GET, to their detriment. Only yesterday, a severe wheelchair patient was informed by a neurologist that he was removing her ME diagnosis, and replacing it with FND. He also told her that she is to attend exercise and rehabilitation sessions which he will oversee. He won't let her stay in a wheelchair. To refuse to obey can trigger a DOLS or even sectioning.
Yesterday, I was sifting through a box of ME papers and found this letter which I will share here. It reveals the attitude of the medical profession that is still prevalent.
I have removed the name of the GP, his colleagues, and the recipient's name. The attitude towards ME patients deliberately created by the BPS school and the small cabal of psychiatrists, and portrayed by the author of the letter, still predominates to the serious detriment of the patients.
Whatever happened to the old adage 'First do no Harm'?
The GMC turns its back on these patients and effectively sanctions the abuse.
Once you have read this, you might like to read the file I have uploaded that explains why the medical profession is so susceptible to this abusive and egotistical behaviour. It is called ME Past, Present and Future and is written by infectious disease consultant and ME expert Dr William Weir.
