I doubt a very severely affected person (as in worst case scenario) is able to use the computer. I mean people who lie in the dark 24/7, use a bedpan to toilet, are strip washed if they can bear it and may be fed through a tube.
Take part in our Severe M.E. Symposium from home
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I agree... I was thinking along the lines of someone helping them out and doing the technical work for them...
Considering the disability that very severely affected patients endure, i think it's almost impossible to include them in a consultation.
I think they can only be included if their carers can contribute.
Considering the disability that very severely affected patients endure, i think it's almost impossible to include them in a consultation.
I think they can only be included if their carers can contribute.
Still struggling with how to access the event - think I have signed upo for livestream, but don't seem to be able to watch anything. Also thought I sorted out google hangouts for the discussion, but this morning I noticed some sort of message from AFME through my google account (which I am not familiar with as I never use it), I tried to accept them but I think I pressed the wrong button and now I cant get the message back - I have done something to it but god knows what...so much effort and now looks like I wont be able to take part.
Justy, I have the same problem. I too am signed up for livestream, but I don't seem to be able to take part either. Perhaps they have checked Sir Prof Wessely's list of potential troublemakers? 
Justy, I have the same problem. I too am signed up for livestream, but I don't seem to be able to take part either. Perhaps they have checked Sir Prof Wessely's list of potential troublemakers?
@Countrygirl - i'm in... on the livestream page I kept clicking the buttons at the bottom right corner saying skip this or done this or finish and now I am in the AFME live page - there a few comments at the bottom already. Not sure about the round table discussions tho - I have google hangouts open but don't know how this will work.
I always knew I was on a special list somewhere.
I even received a phone call a long while ago saying my activities were being watched by an official person who has the power to 'do you harm'. I was very sick and all I was doing was holding large meetings in the county for scientists undertaking ME and OP research. I think there is more than one list in circulation, although I don't honestly think that this morning's problem is due to any more than a technical hitch.
Have you gained access yet? I think I am going to have to give up and do something useful like continue to clear up the flood of water that poured through my roof and bedroom during the heavy rain.
Thanks Justy! I will have another attempt.........or it is back to the buckets.
It's back to the buckets!
I will rely on your running commentary Justy No pressure, of course.
I think it is being posted later, isn't it?
Right...............now to return to the flood.................anyone have the energy to repaint my ceilings please as they have now turned a most unattractive shade of brown rather than the previous dazzling white after the rain storm?
I will rely on your running commentary Justy
No pressure, of course.I think it is being posted later, isn't it?
Right...............now to return to the flood.................anyone have the energy to repaint my ceilings please as they have now turned a most unattractive shade of brown rather than the previous dazzling white after the rain storm?
Is no one able to watch?
Suddenly! We are on!