Symptoms - Orthostatic Intolerance/Ehlors Danhlos


Phoenix Rising Founder
Arizona in winter & W. North America otherwise

Type I

  • * Loose joints
  • * Highly elastic, velvety skin
  • * Fragile skin that bruises or tears easily
  • * Redundant skin folds, such as on the eyelids
  • * Slow and poor wound healing leading to wide scarring
  • * Noncancerous fibrous growths on pressure areas, such as elbows and knees; fatty growths on the shins and forearms
  • * Muscle fatigue and pain
  • * Heart valve problems (mitral valve prolapse and aortic root dilation)

Type II

Hypermobility type (formerly type III) EDS
This type affects approximately 1 in 10,000 to 15,000 people. Signs and symptoms include:

  • * Loose, unstable joints with many dislocations
  • * Easy bruising
  • * Muscle fatigue and pain
  • * Chronic degenerative joint disease
  • * Advanced premature osteoarthritis with chronic pain
  • * Heart valve problems (mitral valve prolapse and aortic root dilation)

Vascular type (formerly type IV) EDS
This type of EDS is rare, but it's one of the most serious. It affects an estimated 1 in 100,000 to 200,000 people. Signs and symptoms include:

  • * Fragile blood vessels and organs that are prone to tearing (rupture)
  • * Thin, translucent skin that bruises easily
  • * Characteristic facial appearance, including protruding eyes, thin nose and lips, sunken cheeks and small chin
  • * Collapsed lung (pneumothorax)
  • * Heart valve problems (mitral valve prolapse and others)

Orthostatic Intolerance

  • Excessive Fatigue
  • Exercise Intolerance
  • Recurrent Syncope or Near Syncope
  • Dizziness
  • Nausea
  • Tachycardia
  • Palpitations
  • Visual Disturbances
  • Blurred Vision
  • Tunnel Vision
  • Graying Out
  • Tremulousness
  • Weakness - most noticeable in the legs
  • Chest Discomfort
  • Shortness of Breath
  • Mood Swings
  • Migraines and Other Headaches
  • Gastrointestinal Problems


Senior Member
Great Catch Cort!

There is a fair amount of medical documents out there that show a strong correlation between EDS (connective tissue disorder), POTS and CFIDS and FM.

Ehlers-Danlos (EDS). I believe that is the correct spelling for EDS. I have to Google it every time since I can't remember how to spell it.