Starting IVIG

dsdmom

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It looks like I will be starting ivig - possibly next week. The first time I have it done I need to go 5 days in a row. I am a bit nervous and am wondering what to expect. For those of you who have gotten ivig, were you pretty miserable and if so, for how long? Should I expect to be out of commission for a week or 2? I'm most worried about a headache I guess.

It was approved based on neuropathy, so it is not for CFS per se.
 

ukxmrv

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I was fine with IVIG, took Benadryl which my doctor recommended. Sadly, no effect on my ME symptoms.

Hope that it goes well for you!

XMRV+
 

dsdmom

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Thanks for your input!
What were you taking it for? Do you remember your dose? And how often?