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- Austin, TX
Greetings,
This is my first post in this forum. I've had fatigue for 3.5 years and have had a SPECT brain scan, QEEG, and MRI done as well as many other blood tests. I get a tension in my head at times which increases to a headache and body contractions if I don't lay down. I saw a neurologist last week and she mentioned the possibility of spinal fluid leaking which can cause certain symptoms like these. A way she said to find out is to have a spinal tap and measure the spinal fluid pressure. The treatment is then injecting blood to clot the leak. For more info, I researched it and found this website: http://www.spinalheadache.org/patientinfo.htm
I've noticed the past 3 days that when I lay down or put my head on a decline below my waist the headache or brain fog goes away very quickly. Don't know if this is due to spinal fluid, blood, or something else, but I have an appointment with the neurologist again tomorrow afternoon to discuss this and figure out if I should go ahead and have a spinal tap done. Since I don't know how knowledgeable she is of CFS, I am wondering if anyone has any recommendations, if I do get a tap done, of the things that would be also good to test for in the spinal fluid related to CFS.
Thanks for your time!
Brent
This is my first post in this forum. I've had fatigue for 3.5 years and have had a SPECT brain scan, QEEG, and MRI done as well as many other blood tests. I get a tension in my head at times which increases to a headache and body contractions if I don't lay down. I saw a neurologist last week and she mentioned the possibility of spinal fluid leaking which can cause certain symptoms like these. A way she said to find out is to have a spinal tap and measure the spinal fluid pressure. The treatment is then injecting blood to clot the leak. For more info, I researched it and found this website: http://www.spinalheadache.org/patientinfo.htm
I've noticed the past 3 days that when I lay down or put my head on a decline below my waist the headache or brain fog goes away very quickly. Don't know if this is due to spinal fluid, blood, or something else, but I have an appointment with the neurologist again tomorrow afternoon to discuss this and figure out if I should go ahead and have a spinal tap done. Since I don't know how knowledgeable she is of CFS, I am wondering if anyone has any recommendations, if I do get a tap done, of the things that would be also good to test for in the spinal fluid related to CFS.
Thanks for your time!
Brent