ScottTriGuy
Stop the harm. Start the research and treatment.
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- Toronto, Canada
Thanks to @Kati for pointing this video out - its 90 minutes and was well worth my time - bonus is the q and a when a doctor in the audience is humble!
Here are my notes:
Spinal Fluid Leaks
Dr Ian Carrol, Stanford, ic38@stanford.edu
Causes:
1. hypermobility (coz durma weaker) (spontaneous)
2. calcified bone pokes hole in durma (spontaneous)
3. spinal tap / epidural / surgery (Post Dural Puncture)
- 30 – 40% of spontaneous pts have multiple leaks
Symptoms: headache, nausea, fatigue, neck pain / stiff, ridicular pain, neurological ‘weirdness’ (cognitive, memory, reading, etc), pituitary may be enlarged coz of CSF (Empty Sella Syndrome: may have low growth hormone; may hypothyroid) – also, feeling worse when standing, or later in the day: but relieved by laying down.
Misdiagnosis: POTS, Chiari Formations, EDS, Tarlov Cysts, chronic migraine, CFS, FM, (maybe Parkinson’s, one case)
Diagnosis:
- often MRI deemed ‘normal’ (“by world class docs”), thus MRI not good diagnostic tool
- CT myelogram will show abnormal
- Elevated protein in CSF
- 20% will have elevated prolactin (coz hypo-thalamus-pituitary-dissociation)
Treatment:
!st: EBP: Epidural Blood Patch (some require repeat after months, some so far so good)
2nd: Fibrin ______________
3rd: Surgery
Here are my notes:
Spinal Fluid Leaks
Dr Ian Carrol, Stanford, ic38@stanford.edu
Causes:
1. hypermobility (coz durma weaker) (spontaneous)
2. calcified bone pokes hole in durma (spontaneous)
3. spinal tap / epidural / surgery (Post Dural Puncture)
- 30 – 40% of spontaneous pts have multiple leaks
Symptoms: headache, nausea, fatigue, neck pain / stiff, ridicular pain, neurological ‘weirdness’ (cognitive, memory, reading, etc), pituitary may be enlarged coz of CSF (Empty Sella Syndrome: may have low growth hormone; may hypothyroid) – also, feeling worse when standing, or later in the day: but relieved by laying down.
Misdiagnosis: POTS, Chiari Formations, EDS, Tarlov Cysts, chronic migraine, CFS, FM, (maybe Parkinson’s, one case)
Diagnosis:
- often MRI deemed ‘normal’ (“by world class docs”), thus MRI not good diagnostic tool
- CT myelogram will show abnormal
- Elevated protein in CSF
- 20% will have elevated prolactin (coz hypo-thalamus-pituitary-dissociation)
Treatment:
!st: EBP: Epidural Blood Patch (some require repeat after months, some so far so good)
2nd: Fibrin ______________
3rd: Surgery