Solve ME/CFS Patient Registry; US, UK and Australia so far?

[Marylib]

Looks like it needs an app. So I guess you have to be able to afford a phone that does app's and all that kind of thing.

https://youandmeregistry.com/?fbclid=IwAR3gImq0Za_JsbKH260S9VIwOLnchdVq_c16qs5_cSYOPowxvoGcIjCf2SU

 

[Zebra]

I am registering, and I am bumping this post up.

I hope others will consider doing both as well.

Right now there are only 200+ people with ME registered.

That's not much for ME researchers to work with.

One by one we could register and better represent the millions of us with ME.

 

[wigglethemouse]

A little more info on this thread
https://forums.phoenixrising.me/thr...cfs-registry-website-live.78710/#post-2251214

 

[Nedge]

@Zebra, have you registered and are you using the app? What's it like??

I only have a provisional diagnosis so presume I can't register, but am struggling to find a good way of keeping track of my symptoms/activities/trials. I've tried a couple of apps designed for general record keeping and find them quite clunky, and was wondering if this is any better. I plan on registering once I have my diagnosis confirmed, but not sure how long that will take.