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Solve ME/CFS Patient Registry; US, UK and Australia so far?

Zebra

Senior Member
Messages
200
Likes
671
Location
Northern California
I am registering, and I am bumping this post up.

I hope others will consider doing both as well.

Right now there are only 200+ people with ME registered.

That's not much for ME researchers to work with.

One by one we could register and better represent the millions of us with ME.
 
Messages
63
Likes
179
Location
Canberra, Australia
@Zebra, have you registered and are you using the app? What's it like??

I only have a provisional diagnosis so presume I can't register, but am struggling to find a good way of keeping track of my symptoms/activities/trials. I've tried a couple of apps designed for general record keeping and find them quite clunky, and was wondering if this is any better. I plan on registering once I have my diagnosis confirmed, but not sure how long that will take.