• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To register, simply click the Register button at the top right.

Solve ME/CFS Patient Registry; US, UK and Australia so far?


Senior Member
Northern California
I am registering, and I am bumping this post up.

I hope others will consider doing both as well.

Right now there are only 200+ people with ME registered.

That's not much for ME researchers to work with.

One by one we could register and better represent the millions of us with ME.
Canberra, Australia
@Zebra, have you registered and are you using the app? What's it like??

I only have a provisional diagnosis so presume I can't register, but am struggling to find a good way of keeping track of my symptoms/activities/trials. I've tried a couple of apps designed for general record keeping and find them quite clunky, and was wondering if this is any better. I plan on registering once I have my diagnosis confirmed, but not sure how long that will take.