Simmaron Research, Patient Day, 9th September 2017

[AndyPR]

From their email newsletter - http://mailchi.mp/0a19070f974f/simmaron-research-news-updates?e=db85dc6e2d

You are Invited to Simmaron Research's Patient Day
for a Research Update

Saturday, September 9, 2017, 1 to 4 p.m.
Location: Donald W. Reynolds Community Building (Parasol)
Main Room, First Floor – The Trepp Room
948 Incline Way, Incline Village, Nevada


Speakers will be:

Dr. Daniel Peterson - Scientific Medical Director
Gunnar Gottschalk – Simmaron Senior Research Fellow attending
Rush University
Dr. Salman Hashmi – George Washington University
Dr. Mady Hornig - Columbia University
Dr. Konnie Knox – Scientific Board Member and Coppe Labs
Dr. Maureen Hanson – Cornell University
Dr. Jan Armstrong - Chairman of the Board
Courtney Miller - Simmaron President
(more speakers may be announced later)

Please RSVP to: redefiningmecfs@gmail.com or 775-298-0030

The patient update is an in person event. Since we do not have the capability to webcast it, Simmaron will circulate a summary following the event so that many who cannot attend in person can benefit from the reports.

Please honor patients' need to make this a fragrance free event.

In this Facebook postupdate, https://www.facebook.com/SimmaronResearch/posts/1685627484802734, they say

In 6 days, on Saturday September 9, SRI will be on FACEBOOK LIVE at 1pm Pacific Daylight Time, USA. With our Scientific Information Day. Among presenters, Dr. Daniel Peterson, Dr. Mady Hornig, Dr. Maureen Hansen, Dr. Jan Armstrong, Courney Alexander and others bringing you up to date on the state of research in ME/CFS currently and specifically focusing on our newest research going to publication.

 

[A.B.]

SRI will be on FACEBOOK LIVE

It's a live video stream.

 

[AndyPR]

It's a live video stream.

Yeah, sorry, I knew that but it didn't occur to me to provide a bit more explanation.

 

[Gemini]

It's a live video stream.

@A.B. do you know if one has to have a Facebook account to view it or is it available to all?

 

[A.B.]

@A.B. do you know if one has to have a Facebook account to view it or is it available to all?

I think it's available to all but don't know for sure. Simmaron Research videos are publicly visible on their facebook page. I assume the live stream will appear like a regular video, just live.

 

[Cort]

I'll be there. Looking forward to it.

 

[shannah]

Will you be tweeting @Cort ?

Cort is tweeting from https://twitter.com/CortJohnson

 

[Snow Leopard]

I'll be there. Looking forward to it.

Can you please ask the researchers about whether anyone has any ideas about the link of CFS following Guillain–Barré syndrome?

There seems to be a pervasive myth that most GBS patients have good recoveries.

Patient experiences:
http://www.steadyhealth.com/topics/guillain-barre-and-chronic-fatigue?page=1

http://www.sciencedirect.com/science/article/pii/S0022510X12000482
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4162023/
https://www.ncbi.nlm.nih.gov/pubmed/27077919

etc.

At the very least this seems like an interesting subgroup of patients with specific disease pathology.