• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To register, simply click the Register button at the top right.

Simmaron Research, Patient Day, 9th September 2017

From their email newsletter - http://mailchi.mp/0a19070f974f/simmaron-research-news-updates?e=db85dc6e2d
You are Invited to Simmaron Research's Patient Day
for a Research Update

Saturday, September 9, 2017, 1 to 4 p.m.
Location: Donald W. Reynolds Community Building (Parasol)
Main Room, First Floor – The Trepp Room
948 Incline Way, Incline Village, Nevada


Speakers will be:

Dr. Daniel Peterson - Scientific Medical Director
Gunnar Gottschalk – Simmaron Senior Research Fellow attending
Rush University
Dr. Salman Hashmi – George Washington University
Dr. Mady Hornig - Columbia University
Dr. Konnie Knox – Scientific Board Member and Coppe Labs
Dr. Maureen Hanson – Cornell University
Dr. Jan Armstrong - Chairman of the Board
Courtney Miller - Simmaron President
(more speakers may be announced later)

Please RSVP to: redefiningmecfs@gmail.com or 775-298-0030

The patient update is an in person event. Since we do not have the capability to webcast it, Simmaron will circulate a summary following the event so that many who cannot attend in person can benefit from the reports.

Please honor patients' need to make this a fragrance free event.

In this Facebook postupdate, https://www.facebook.com/SimmaronResearch/posts/1685627484802734, they say
In 6 days, on Saturday September 9, SRI will be on FACEBOOK LIVE at 1pm Pacific Daylight Time, USA. With our Scientific Information Day. Among presenters, Dr. Daniel Peterson, Dr. Mady Hornig, Dr. Maureen Hansen, Dr. Jan Armstrong, Courney Alexander and others bringing you up to date on the state of research in ME/CFS currently and specifically focusing on our newest research going to publication.
 

A.B.

Senior Member
Messages
3,780
@A.B. do you know if one has to have a Facebook account to view it or is it available to all?

I think it's available to all but don't know for sure. Simmaron Research videos are publicly visible on their facebook page. I assume the live stream will appear like a regular video, just live.
 

Snow Leopard

Hibernating
Messages
5,902
Location
South Australia
I'll be there. Looking forward to it.

Can you please ask the researchers about whether anyone has any ideas about the link of CFS following Guillain–Barré syndrome?

There seems to be a pervasive myth that most GBS patients have good recoveries.

Patient experiences:
http://www.steadyhealth.com/topics/guillain-barre-and-chronic-fatigue?page=1

http://www.sciencedirect.com/science/article/pii/S0022510X12000482
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4162023/
https://www.ncbi.nlm.nih.gov/pubmed/27077919

etc.

At the very least this seems like an interesting subgroup of patients with specific disease pathology.