overtheedge
Senior Member
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Sign this petition to demand the NIH fund MECFS roadmap
- Thread starter overtheedge
- Start date
overtheedge
Senior Member
- Messages
- 271
Please sign this if you haven't already
In the original post I would have put something more than just the link but I'm so dead tired lately
I thought about what to write about this letter but I found a post on another forum that says it perfectly so I'm copy/pasting it below:
"MEAction is organizing a community letter to ask NIH to fund the ME/CFS Research Roadmap, which NIH developed over the past year—but has committed no money to actually pursuing.
US folks can sign on here: https://win.newmode.net/fundmeroadmap
And international folks here: https://airtable.com/appls0UcwWjmI3TWw/pagMvv9RZYLxZiDFe/form
Takes 1 min to sign—it asks for street address to verify it’s a real address, but the petition will only show your name and city.
IMHO, this is a savvy ask because the Roadmap was developed with leading ME experts outside NIH, and it’s public (you can read it here: https://www.ninds.nih.gov/sites/default/files/2024-05/Report of the MECFS Research Roadmap Working Group of Council_508C.pdf), so we know it focuses on important issues in the biological basis of ME. It’s an ask not just to fund ME, but specifically to fund the kind of research we’ve needed for way too long.
Thanks for signing and sharing with any supportive friends or family! The CDC says there are 3.3 million of us—it would be great to show NIH how broad the impact of ME is!"
In the original post I would have put something more than just the link but I'm so dead tired lately
I thought about what to write about this letter but I found a post on another forum that says it perfectly so I'm copy/pasting it below:
"MEAction is organizing a community letter to ask NIH to fund the ME/CFS Research Roadmap, which NIH developed over the past year—but has committed no money to actually pursuing.
US folks can sign on here: https://win.newmode.net/fundmeroadmap
And international folks here: https://airtable.com/appls0UcwWjmI3TWw/pagMvv9RZYLxZiDFe/form
Takes 1 min to sign—it asks for street address to verify it’s a real address, but the petition will only show your name and city.
IMHO, this is a savvy ask because the Roadmap was developed with leading ME experts outside NIH, and it’s public (you can read it here: https://www.ninds.nih.gov/sites/default/files/2024-05/Report of the MECFS Research Roadmap Working Group of Council_508C.pdf), so we know it focuses on important issues in the biological basis of ME. It’s an ask not just to fund ME, but specifically to fund the kind of research we’ve needed for way too long.
Thanks for signing and sharing with any supportive friends or family! The CDC says there are 3.3 million of us—it would be great to show NIH how broad the impact of ME is!"