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There has been a "Chili Challenge"
People are now being asked to "Wear Your Undies On The Outside for ME/CFS"
I'm a severe patient and I'm asking people to take an "Agreement Challenge". This is a huge forum. Think of the kind of power we could have if we came together on all the things that we already agree on and could use that to communicate with congress, NIH, media and others. How many people would sign a comprehensive petition like that? What do we deserve like any other disease; not what do we think we might get? What would that look like?
Please read my posts on this page. While it was part of another conversation, it contains some of my ideas and I can't write anymore.
http://forums.phoenixrising.me/inde...-to-give-solve-webinar-21-april.43573/page-10
Please read this post.
http://forums.phoenixrising.me/inde...ng-gets-24-000-signatures-and-counting.44259/
I find it astonishing that she didn't do this inside the ME/CFS community. Does that tell you something?
This is all that I can do. The rest is up to anyone who responds.
People are now being asked to "Wear Your Undies On The Outside for ME/CFS"
I'm a severe patient and I'm asking people to take an "Agreement Challenge". This is a huge forum. Think of the kind of power we could have if we came together on all the things that we already agree on and could use that to communicate with congress, NIH, media and others. How many people would sign a comprehensive petition like that? What do we deserve like any other disease; not what do we think we might get? What would that look like?
Please read my posts on this page. While it was part of another conversation, it contains some of my ideas and I can't write anymore.
http://forums.phoenixrising.me/inde...-to-give-solve-webinar-21-april.43573/page-10
Please read this post.
http://forums.phoenixrising.me/inde...ng-gets-24-000-signatures-and-counting.44259/
I find it astonishing that she didn't do this inside the ME/CFS community. Does that tell you something?
This is all that I can do. The rest is up to anyone who responds.