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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Severe ME Video Diary

Carrigon

Senior Member
Messages
808
Location
PA, USA
A friend gave me the link to Tara's story on Youtube. Tara is a severe case of ME and her mother made a video diary showing how severe this disease can be.
http://www.youtube.com/user/PreoccupiedPorcupine
She also talks about how they have tried time and again to get real medical help for Tara and are constantly treated with contempt by the medical community. And each time they try to get help, Tara ends up far worse. It's really a heartbreaking story. Her mother made these videos to try to help with advocacy, so I put this post in this advocacy section here. It's just so amazing that anyone can look at Tara and deny she is physically ill with a biological disease.
 
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