Severe ME/CFS Homebound Study

[chickpea]

Dr Klimas clinic is doing a study on those severely affected and are homebound. Must be able to travel to Florida for at least one visit.
Precious G. Leaks-Gutierrez, MBA
Clinical Research Project Coordinator
Nova Southeastern University
Institute for Neuro Immune Medicine
8501 SW 124TH Ave, Suite 111
Miami, FL 33183
305-275-5450

 

[veganmua]

homebound

Must be able to travel to Florida

Hmm... Can they not send out nurses for homebound patients?

 

[IreneF]

I am not completely housebound but I certainly can't go to Florida. I can't go anywhere that's more than about an hour or two away by car. It doesn't seem reasonable to expect housebound people to travel.

 

[trishrhymes]

I guess part of the study includes using some sort of hospital based equipment like scanners. Even then, theoretically this could be arranged at the patient's local hospital. But I guess that would be very costly.

 

[AndyPR]

Dr Klimas clinic is doing a study on those severely affected and are homebound. Must be able to travel to Florida for at least one visit.
Precious G. Leaks-Gutierrez, MBA
Clinical Research Project Coordinator
Nova Southeastern University
Institute for Neuro Immune Medicine
8501 SW 124TH Ave, Suite 111
Miami, FL 33183
305-275-5450

Is there a link to more details? I've tried Google but couldn't find anything.

 

[Neunistiva]

@AndyPR I think I've found it:

"Homebound Study:

We are currently enrolling patients diagnosed with ME/CFS or Post-Infective Fatigue (PIF) that are unable to leave their homes for office visits without severe consequences. Eligible particpants must be between the ages of 18 and 70 years of aged and diagnosed with their illness prior to age 62.

For more information, please contact Precious Leaks-Gutierrez at 305.275.5450 or email INIMresearch@nova.edu with the subject "Homebound Study"
"

http://www.nova.edu/nim/research/research-studies.html

 

[Barry53]

Must be able to travel to Florida for at least one visit.

Maybe this would include paying for special transport if that helped?

 

[AndyPR]

@AndyPR I think I've found it:

"Homebound Study:

We are currently enrolling patients diagnosed with ME/CFS or Post-Infective Fatigue (PIF) that are unable to leave their homes for office visits without severe consequences. Eligible particpants must be between the ages of 18 and 70 years of aged and diagnosed with their illness prior to age 62.

For more information, please contact Precious Leaks-Gutierrez at 305.275.5450 or email INIMresearch@nova.edu with the subject "Homebound Study"
"

http://www.nova.edu/nim/research/research-studies.html

Looks like it, good find. Doesn't make any mention of travelling to Florida though, which would seem to make more sense to me.

 

[chickpea]

I had called them, as I live in MN. She had said, that we can do everything from home but that I would need to be seen for at least one visit. I'd call and ask.