Hope123
Senior Member
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The CFSAC, CFS Advisory Committee, is the US federal committee that advises the Department of Health and Human Services, which controls FDA/ CDC/ NIH/ Medicare/ Medicaid/ Social Security, etc., on issues about CFS. The announcement just came out yesterday that the meeting is OCT 12 - 14 this year.
CFSAC has allowed people with CFS to testify in three ways:
- in-person at the meeting
- by telephone
- by written letter or e-mail
This is one of the few chances where you get to be heard by government officials gathered together.
Usually, we get a couple weeks to respond but they just announced it yesterday and put the deadline for us to respond as SEPTEMBER 17 (yes, only 10 days!).
You can send your (named or anonymous) requests/ questions/ letters/ e-mails (max 5 pages) to:
Wanda K. Jones, DrPH; Executive Secretary, Chronic Fatigue Syndrome Advisory Committee, Department of Health and Human Services; 200 Independence Avenue, SW., Hubert Humphrey Building, Room 712E; Washington, DC 20201. Please direct all inquiries to cfsac@hhs.gov.
[Full details: http://www.federalregister.gov/arti...onic-fatigue-syndrome-advisory-committee#p-4]
[Thanks to Ruth for spotting this. I started this thread so the deadline date was highlighted. May be merged with : http://www.forums.aboutmecfs.org/sh...-CFSAC-meeting-Oct-12-14&p=121211#post121211]
CFSAC has allowed people with CFS to testify in three ways:
- in-person at the meeting
- by telephone
- by written letter or e-mail
This is one of the few chances where you get to be heard by government officials gathered together.
Usually, we get a couple weeks to respond but they just announced it yesterday and put the deadline for us to respond as SEPTEMBER 17 (yes, only 10 days!).
You can send your (named or anonymous) requests/ questions/ letters/ e-mails (max 5 pages) to:
Wanda K. Jones, DrPH; Executive Secretary, Chronic Fatigue Syndrome Advisory Committee, Department of Health and Human Services; 200 Independence Avenue, SW., Hubert Humphrey Building, Room 712E; Washington, DC 20201. Please direct all inquiries to cfsac@hhs.gov.
[Full details: http://www.federalregister.gov/arti...onic-fatigue-syndrome-advisory-committee#p-4]
[Thanks to Ruth for spotting this. I started this thread so the deadline date was highlighted. May be merged with : http://www.forums.aboutmecfs.org/sh...-CFSAC-meeting-Oct-12-14&p=121211#post121211]