Send your treatment experiences to BBC Radio 4

[Jenny]

ME was discussed on Radio 4 Woman's Hour today and they want people to email their experiences of treatment.

A great opportunity!

Here is the link to the section of the programme: http://www.bbc.co.uk/programmes/p00fpqv5

Here is the link for comments: http://www.bbc.co.uk/radio4/features/womans-hour/contact-us/

(Thanks Bob for posting a better link and for noticing the original thread was in the wrong section!)

Jenny

 

[Enid]

A great opportunity indeed Jenny - I've posted comments to the BBC - hoping many will join in too.

 

[SaveMe]

I listened to that BBC clip on ME and 2 things struck me.
The person mentioned in the clip, Oliver, is 20 (male).----> Im 20 (male)
The person mentioned in the clip, Oliver, had ME since 2009-----> I had this illness since 2009
I want to meet Oliver.

the only thing I really dislike about the clip is when the interviewer, Jennie Murray, says "do they (CFS-ME patients) grow out of it"
this is not a phase in life. we cant just grow out of it. very poor choice of words there.

Also they only focus on the narrow treatment of Exercise and CBT, never do they talk about anti-virals, research in the US, or anything else.
So i rate this clip 5/10