At the end of June, Senators Casey, Blumenthal and Hagan sent a letter to Secretary of Health Kathleen Sebelius requesting the FDA hold a stakeholders meeting on chronic fatigue syndrome. All three Senators serve on the Committee on Health, Education, Labor and Pensions which oversees the FDA. The letter stated
Thanks again to the patient community for your emails and
We are grateful to these Senators for realizing our plight and choosing to engage our health officials in finding solutions.
- Read the FDA's response to advocates request for a Stakeholder's Meeting
- Check out Phoenix Rising's FDA Resource Center For ME/CFS for more on the push for the Stakeholder's Meeting