Hi-I'm sorry if this has already been covered, I am new to the forum, so still learning the in's and out's. I was wondering if anyone else has experienced a new onset of seizures since getting CFS. I had a seizure a couple of weeks ago, and have never had one before (I am 37) and have no family history of seizures. BTW-as usual my docs offer zero help. In fact, his answer to this was to pat me on the shoulder and tell me to "try not to let it happen again"! I have all of the usual crap that goes with this DD-multiple deficiencies, thyroid, adrenal, etc., EBV, mycoplasma, HHV-6, parvovirus, elevated levels of heavy metals, OI, etc. I've had symptoms since about the age of 11 or 12, but did not become debilitated until 3 years ago, following back surgery. I've tried nearly everything available to me including numerous supplements, anti-virals, antibiotics,etc. Valcyte gave me horrendous side effects, antibiotics made me feel like I was going to die, and Immunovir helped significantly-but only for about a month, then stopped working altogether. I'm really at a loss as to what to try next-my doctors act as if I'm nuts and they think XMRV is a big joke. I'm getting tested anyway-just waiting for the kit-don't care that there' no treatment yet-I just NEED to know. The seizure has me a bit concerned though, as I spend 90% of my time alone-predominantly housebound, sometimes bedbound. Is there some sort of test I should be asking for to further investigate, or would it just be a waste of time?