Seeking Doctor In Chicago

[miyarisan for the win]

Looking for a doctor or specialist in chicago Illinois. Have not been diagnosed with me/cfs but believe there is a high probability.

 

[invisiblejungle]

I live in the suburbs, and as far as I know from speaking with other people in this area, there are no ME/CFS specialists here.

 

[miyarisan for the win]

That’s unfortunate. I haven’t had much time to navigate this forum but do you know if there are any members that work with undiagnosed individuals?

 

[Judee]

I don't know Dr. Jason PhD. but I took this from one of my earlier posts because I thought it might be helpful to someone in Central Wisconsin who was asking about someone in Wisconsin. (And no, I haven't been able to find anyone here even though the WI Chapter of WICFS gave me the name of a doctor just up the street):

I noticed Leonard A. Jason, PhD Director: Center for Community Research, DePaul University, Chicago IL Board of Directors: American Association for Chronic Fatigue Syndrome listed in the The Canadian Consensus Document on ME/CFS and have thought about contacting his department to see if he knows of any treating CFS specialists in the area.

Some of his papers make him sound very sympathetic to PWC (people with CFS) so maybe he will know of someone. Will you let me know if he tells you? Going to Chicago still seems like traveling to the moon to me but at least it would be closer than some of the other states that have CFS doctors.

**Maybe post it too if he doesn't because I don't want to keep sending people his way and make him frustrated with us.

 

[invisiblejungle]

I don't know Dr. Jason PhD. but I took this from one of my earlier posts because I thought it might be helpful to someone in Central Wisconsin who was asking about someone in Wisconsin. (And no, I haven't been able to find anyone here even though the WI Chapter of WICFS gave me the name of a doctor just up the street):

I noticed Leonard A. Jason, PhD Director: Center for Community Research, DePaul University, Chicago IL Board of Directors: American Association for Chronic Fatigue Syndrome listed in the The Canadian Consensus Document on ME/CFS and have thought about contacting his department to see if he knows of any treating CFS specialists in the area.

Some of his papers make him sound very sympathetic to PWC (people with CFS) so maybe he will know of someone. Will you let me know if he tells you? Going to Chicago still seems like traveling to the moon to me but at least it would be closer than some of the other states that have CFS doctors.

**Maybe post it too if he doesn't because I don't want to keep sending people his way and make him frustrated with us.

I just sent him an email.

 

[confetti11]

Not sure about Chicago, but I see Dr. Dale Guyer in Indianapolis, 2.5-3 hour drive. As far as I know, he will do phone appts from the start. I've seen him for 18 years, and he has been extremely helpful.

If you're into alternative treatments, you have one of the best homeopathic doctors in your area: Dr. Joel Shepperd in Lombard.

 

[invisiblejungle]

Looking for a doctor or specialist in chicago Illinois. Have not been diagnosed with me/cfs but believe there is a high probability.

Hi Miyarisan,

I contacted Dr. Leonard A. Jason, the researcher at DePaul who Judee mentioned. He referred me to the CFCCC (Chronic Fatigue Syndrome, Fibromyalgia, and Chemical Sensitivity Coalition of Chicago), an organization I'm already familiar with.

They have a list of doctors here:
http://www.cfccc.net/DoctorsEtc.htm

I've had this list for a long time, and as far as I know, none of these practitioners specialize in ME/CFS.

 

[Judee]

Oh...

@invisiblejungle, thanks for trying. Thanks for the update too.

 

[invisiblejungle]

Not sure about Chicago, but I see Dr. Dale Guyer in Indianapolis, 2.5-3 hour drive. As far as I know, he will do phone appts from the start. I've seen him for 18 years, and he has been extremely helpful.

If you're into alternative treatments, you have one of the best homeopathic doctors in your area: Dr. Joel Shepperd in Lombard.

Hi Confetti,

Dale Guyer is on my list of "potential" doctors. Can you tell me more about the treatments he's used to help you? His website is pretty vague in regards to CFS, and I've tried most of the modalities listed on his site.

And thank you for the heads-up on Joel Shepperd. He's also on my list, so it's nice to hear a personal referral.

 

[invisiblejungle]

Looking for a doctor or specialist in chicago Illinois. Have not been diagnosed with me/cfs but believe there is a high probability.

Just wanted to say that even though none of the doctors on the CFCCC list truly specialize in ME/CFS, it might still be worth seeing one of them, especially since it sounds like you don't for sure yet if you have ME/CFS.

 

[Stretched]

Here’s what I do when contacting a new doctor: simply make an appointment for routine preventative medicine. Take with me a write up page of my symptoms in easy-to-read bulleted form, along with a list of medicines and supplements i’m taking. Also, i print out a copy of “The Physician’s Guide for Treating MECFS” by the WHO, World Health Organization. Earmark the sections that pertain to me and proceed.

...Tell the doctor you simply want to treat the symptoms. Otherwise, if you disclose MECFS too much in advance you’re likely to get a “we don’t treat that here.” In reality, the ‘specialists don’t have magic elixirs. They treat symptoms and sometimes take a SWAG at what CFS is all about but they don’t have any special medications. It’s all outlined in the WHO pamphlet.

 

[LizAtRest]

Looking for a doctor or specialist in chicago Illinois. Have not been diagnosed with me/cfs but believe there is a high probability.

Dr Zoldan!

 

[tiredgirl928]

Dr Zoldan!

What are this doctors treatments like?